Changing hospitals - has anyone done this?

Hi Buchan and welcome to the group and the community.

It can be difficult to feel that you’re not getting clear communication from your consultant, and I understand how this can affect the trust you have in them. I don’t have personal experience of changing to a different consultant/hospital, but this process might be something that that the nurses could advise on. 

If you click on the link I’ve given here, you can then post your question there, though please allow a couple of days for a reply.

Ask A Nurse

I hope you can get some advice that will help you move forward with this.

Sarah xx

Personally, I would push for a CT scan and an earlier appointment. PALS might be able to help if you're getting nowhere. There have been discussions about getting second opinions and changing hospitals on the My Ovacome Healthunlocked forum which you might find useful.

Thanks for your response. I will look there. I’m still quite concerned; front line treatment was excellent and prompt, but for second line investigations just haven’t had the same urgency, although I have had my scan - results inconclusive. CA125 has doubled to 500 but no appointment til later in September. But they’ve sorted a prescription for Letrazole in the meantime. I can’t pretend I’m not worried. Thanks again. 

Perhaps you might look at getting a second opinion in that case. The Royal Marsden and The Christie are the two hospitals most often mentioned for this. Inconclusive CT scans can be a nuisance as they can delay treatment starting (been there myself). Are you symptomatic? My oncologist started chemo on rising CA125 levels and symptoms ahead of a CT scan, his argument being to alleviate symptoms.