Germline ovarian cancer with braca mutation carcinosarcoma

Hi are you in the uk? Reason i ask, I finished the 2 year course of lymparza on 15th December 2022 , and I saw my oncologist on Thursday last week and he said the rules had changed re nhs funding and I could continue, but when he checked with pharmacy, they said because i was NED,  it wouldn’t be funded by nice!  Good luck x 

Hi Janet

I am Canadian. I can get finding as long as l stay on lynparza. My oncologist was concerned about the long term effects of lynparza past 2 yrs. 

Joy

Hi Joy- ah different system to the uk - yes long term effects are a worry  - I am not sure what I would do , all these oncologists seem to have different views on the long term effects weighing against the benefits - especially with your heart issue …. I wish you well in your decision 

xx

Hi Janet

Yes. I am concerned too. According to information provided by Mayo clinic  patient should stay on lynparza for up to two years.

If there is cancer patient can continue lynparza past two years. 

I hope I made the right decision

All the best

Joy