So I never expected to be here at 31 years old. I’ve had acid reflex for years and I have multiple chronic illnesses including PCOS, asthma, EDS, IBS
My Dr has been putting off investigating my reflux for years and just keeps me on omeprozole but it’s becoming less effective. I starting looking online to see what to do but starting noticing that some of my symptoms were cropping up for bowel cancer, I dug a little deeper and discovered that actually not just the symptoms I was looking for but symptoms for my other illnesses were joined by one thing, ovarian cancer. Periods after menopause? Sign of OC. Asthma worsening? Sign of OC. BP all over the place? OC. Increase in testosterone. OC. Bloating, feeling full, loss of appetite. OC. Etc etc.
I started getting worried and tried to tell myself that Google had got in my head. So I booked an appointment at my GP and listed my symptoms but didn’t tell him what I thought. He came to a similar conclusion. He ran a bunch of blood tests but all came back fine.
Then I got a call from my Endocrinologist as I’m trying to get back on meds for my PCOS and I’d just had some bloods done for that. She wanted to do more tests, I told her about my GP and she said yes that’s one of the things it could be, alongside 2 other things.
She ran more bloods but those came back normal. So now I’m booked in for a pelvic MRI and I’m really scared.
That’s two rounds of blood tests that failed to find something other than cancer. And now I’m off for an urgent MRI. Im scared and angry because I’ve felt unwell for a while but my GP didn’t take me seriously and I’m so Unwell as my day to day usual I put my symptoms down to my other conditions. Seeking medical help is exhausting because I’m never taken seriously. It took me over 5 years to get diagnosed with my fibromyalgia and I’ve had issues with reflux for 5 years now too and still can’t get help.
Part of me feels like I’m just “being dramatic” and let Google worry me. But, the fact that two different Drs looking at two different things share a potential diagnosis is scary. And the more tests that don’t find something else, the closer we get to worst case scenario. And I’m filled with dread and anxiety and I keep trying to tel myself it’s okay to be scared but years of fighting to be heard and dismissed makes me feel like I’m being a hypochondriac and wasting the NHSs time and resources. Has anyone else felt like that?
Hi
I had similar feelings of wasting NHS time but deep down knew I was unwell - after 2years of testing and different symptoms due to Long Covid and possible COPD I discovered I had breast cancer.
So my advice is don’t give up, you know your body best. I think anxiety is made worse by the not knowing, once you are dignosed treatment can be started to recover to full health.
Keep going, you got this!
Hugs 
