Hi everyone
I don’t know where to start, I’ve been reading through the message boards and everyone is so supportive so thought I’d ask some questions.
My mum was diagnosed with stage 4 cancer in December 2019, she had a growth in her womb and it had spread to her bowel. After receiving Taxol every 3 weeks she had surgery in May that was deemed successful, they did a full hysterectomy and all signs of the spread were gone. Fast forward to December 2020 and her CA125 had gone up to the 80s and a scan showed it was back with spots on the out side of her lungs and again her bowel. She started taxol once a week for 3 weeks, week off cycle for 18 weeks and is on a trial drug Cediranib. She feels so rough between bouts of constipation and diarrhoea, she’s going to struggle to get through the 18 weeks. Her BP isn’t great and the stress just elevates it, knowing dad is outside on a parking meter for 6 hours every time just worries her, and you can imagine what dad is like. Because of COVID she’s on her own with treatment, consultants, scans and results. We can’t ask questions and mum is too scared to. I’m was just wondering if any one else has taken the trial drugs, or been in the same position and got through it second time around. I want to give support but google can be so scary I can’t look at it any more. She hasn’t had a CA125 result since she started, her scan and full bloods were yesterday with results on Tuesday, again on her own, it’s so scary.
Thanks in advance, C x
