Cancer is isolating, rare cancers seem unsupported and the most isolating

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I’m sure this group is deserted because people come here desperately seeking others, but find a Marie Celeste. 
anyone have any ideas on how to find online support for us oddities?

FYI I have CMML2 a blood cancer (but not listed in the blood cancers group)

  • I'd like to join the Zoom Support Groups - if I can.  I've got links to Wessex Cancer Trust Zoom groups but, again, they're all mixed.  Don't get me wrong, it's good to chat to them - especially since I don't go out, except to chemo and blood test sessions - but I'm hoping that I can get out when these restrictions are lifted.  Pre Covid I used to go to the local centre on the bus and sit there chatting over several cups of coffee but that's out of the question at the moment :( ,  I'm looking forward to being able to do that again. .  

  • Hi  do check out Maggie’s Centre as our local centre runs a very good monthly Heamatology/blood cancer Zoom Support Group where our local Specialist Heamatology Nurse try’s to get along.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi March 19, I apologise or not replying sooner and would love to have a great excuse but I don't have one sorry. Have you been able to speak to others in our boat or are you still in limbo like me? If you would like to get back in touch i will do my utmost to reply much sooner. Take Care.