Had my last blood test on 22nd of December had a phone consultation he asked me if was on the drink my blood count was not good but he is going to leave me another 2 months having problems with cramp in my feet & hands n fingers anyone else get these
I am newly diagnosed with ET. Just taking aspirin until my first appointment in a month at MPN clinic, having seen haematologist twice and had numerous blood tests to confirm diagnosis. I am asymptomatic and otherwise very healthy, but in my early 60s...
Hi everyone, My wife was diagnosed with ET yesterday following a routine blood test after an operation. Our GP hand delivered a letter with the diagnosis yesterday, with no explanation of what the condition is or what to expect. google is not your...
Hello everyone I was diagnosed with MF on 6th January 2022. On 9 Jan I awoke with pain on the left side of my stomach and in the left shoulder. I had no idea this was related to my recent diagnosis of MF. I was admitted to hospital where I had tests...
Hello everyone :) I was diagnosed last year at the age of 20 with my platelet count 879 .. I have had a few issues and one blood clot on my lung. I have been put on hydroxycarbamide for 8 months , but lately had incredible pain in my bones and found...
To Amadores, Good luck with your journey to get well, thinking of you. best wishes, Naugus
I’m sure some of you have been contacted by Blood Cancer UK about the Walk of Light on 25 March. I’m still staggering on trying to complete 25km by the 25th and have managed almost 15km so far. The weather has been very cold but really sunny so that’s...
Hi all, I was diagnosed with ET earlier last month and just joined the group. I’m 21 and a student nurse and I hope to work in oncology once I qualify. I have chosen to join this group to speak to people that are in a similar situation to myself- in...
Hi all, I was diagnosed with ET about 2 years ago at the age of 37, at first like most I was absolutely overwhelmed and scared and didn’t really know what to think. However after a lot of reading and a great consultant I managed to get a better idea...
Hi Everyone Hi everyone, I am new on here, I am 59 years old and was diagnosed with a very rare blood cancer called Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) I was wondering if anybody else has been diagnosed with it or even come across...
