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Fate has decided that I should get a dose of Myelofibrosis, came as a bit of a shock but hey ho.

I'm post transplant (1year) If there is anyone who is awaiting treatment,I'd be happy to shatmre my experience,tell you what you mightneed,what will happen to you etc.

If I sound flippant about contracting this disease it's because I've always managed to keep a sense of humour about me,even in the dark times.Its happened, nothing I can do about that,deal with it day by day.

tvman 8 hours ago

Hi Landys3, welcome to our Incurables group, I have to say that you'll meet some of the most sensitive, caring, supportive, friendly (I could give you more adjectives) people I know.

Sorry to read about your situation, glad to see that you have a great attitude to your particular cancer, it's commendable and there are many more like you.

I also have a blood cancer, myelodysplasia (MDS) and after reading about myelofibrosis, I find that I share many of your symptoms. Unfortunately I can't have blood transfusions due to a different rare blood disease called haemochromatosis, known colloquially as iron overload or the Celtic Curse. Just makes things a little more complicated.

I'm looking forward to seeing your name on the site and I hope that you too will meet many friends.

Tvman x

Love life and family.

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