I have been diagnosed with Post Transplant Lymphoma Disease. I have had lymphoma cancer since 2021. I have gone through R - Chop Chemo Therapy. I have also had Radiotherapy in 2022. When my Cancer came back. I am now waiting for my second Chemo Therapy...
My husband has just had his first chemo and is awaiting his second Intrathecal in three weeks. He does have mild Altzheimers and feels pain more than normal. He is complaining of pain going down his right lower arm into wrist and base of thumb. About...
Hi At the start of this week I was diagnosed with low grade Waldenstrom Macroglobulinemia. So I am now doing watch and wait as no treatment currently required. The Waldenstrom’s was only discovered incidentally due to the fact for the last 2 years...
Hi I am new here. I was diagnosed with Angioimmunoblastic T-cell Lymphoma at the start of this year. I have had chop chemo and am currently awaiting petscan results to see if transplant with my own stem cells can go ahead (scary times).
Hi my name is Jane im new here but not new to (NHL), I was diagnosed with CLL in 2015 and on watch and wait until 2018 when a hospital visit found I had SMZL. I had Rituximab and chemo treatment followed by 4years 2mths of more w&w. I’m now back on...
Hi, for the last 5 months it was thought that I had lung cancer. I’ve just had the pathology results from the lower left lung lobectomy I had to have. It turns out I have marginal zone lymphoma. can anyone please help me understand what this is ? What...
My mother was recently diagnosed with Stage 1E CNS Lumphoma. She had a mass in her cerebellum that was causing her severe balance issues, dizziness, and nausea. As they could not reach a diagnosis any other way, they ended up doing a biopsy and resection...
Hi my names matt and I'm 39 and I was told last week that I have lymphoma, biopsy has gone off to Southampton for further tests and I have a pet ct scan this Friday. In so much pain and so scared right now, can't sleep due to the pain and anxiety. Doctor...
Hi, I'm a 57 year old woman who developed severe symptoms of interstial cystitis, a benign condition, in my late thirties but despite haematuria it took 6 years to get a cystoscopy and immediate diagnosis of end stage IC with a severely inflamed, scarred...
Hi All I was diagnosed in Nov 2022 following biopsy of lump. It felt like a bit of a whirlwind of staging blood tests and scans and initial treatment thinking was radiotherapy to lump to get rid of it. I had no symptoms other than initial lump so I felt...
