Hi Everyone
New on here and wondering what people’s thoughts are of my situation as i’m going out of my mind.
i’ve had a MRI and biopsy done on a lesion of my prostate Which came back saying that due to staining and small lymphocytes found there is a Suspicion of lymphoma.
Samples were sent off for genetic molecular testing 4 weeks ago. I have had a CT scan that I’ve been told found everything normal except a 2cm nodule on my adrenal gland. I was basically told that the scan results indicated no metastasis. The MRI showed the lymph nodes around the prostate are unaffected and the effected lesion thats grown from 2cm to 4cm in four years is contained within the prostate.
hopefully I will know the outcome in a weeks time but just wondered what peoples thoughts of my prospects are. I haven’t lost weight I don’t get fevers or have a skin rash. I’m able to walk for two hours but I do get the occasional night drench where I have to change the sheets sometimes it’s just a head sweat and I have to turn the pillow over but about 60% of the time I’m dry.
I’m not sure how relevant some of this is but felt if I put everything in this message then maybe someone can help.
Looking forward to any responses, thank you
Hi Button phobic and a warm welcome to this corner of the Community although I am sorry to see you joining us and to hear about your concerns.
I am Mike and I help out around our various Lymphoma groups.
I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so I most definitely appreciate the challenges of this journey rather well.
The bottom line is, as Lymphoma is a blood/lymphatic system cancer the Lymphoma can basically turn up anywhere the blood and Lymphatic System flows…..
People’s experience of Symptoms can be ever so different…… back in 1999 the only symptom I had was a small developing rash on my back…..
The main tools for the Diagnosis of Lymphoma is scans and biopsy……. There are many more people who were investigated for Lymphoma and turned out to be something else than people who are actually diagnosed with Lymphoma.
But the flip side….. there is a significant group of people who were diagnosed with Lymphoma because they were being investigated for something completely different.
……. If this is one of the 60 types and sub-types of Lymphoma on the whole your prospects would be good. Lymphoma is very treatable with great outcomes.
I do hope you get clear answers soon….. do come back with any specific questions.
Hi Button phobic and a warm welcome to this corner of the Community although I am sorry to see you joining us and to hear about your concerns.
I am Mike and I help out around our various Lymphoma groups.
I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so I most definitely appreciate the challenges of this journey rather well.
The bottom line is, as Lymphoma is a blood/lymphatic system cancer the Lymphoma can basically turn up anywhere the blood and Lymphatic System flows…..
People’s experience of Symptoms can be ever so different…… back in 1999 the only symptom I had was a small developing rash on my back…..
The main tools for the Diagnosis of Lymphoma is scans and biopsy……. There are many more people who were investigated for Lymphoma and turned out to be something else than people who are actually diagnosed with Lymphoma.
But the flip side….. there is a significant group of people who were diagnosed with Lymphoma because they were being investigated for something completely different.
……. If this is one of the 60 types and sub-types of Lymphoma on the whole your prospects would be good. Lymphoma is very treatable with great outcomes.
I do hope you get clear answers soon….. do come back with any specific questions.
