Hi all, I was diagnosed with lymphoma of above in May, and started two months Rituximab treatment, once a week….I now have to be monitored every three months for two years.
i had my first monitoring consultation a month or so ago and I’m in remission, which is good news and I know for peace of mind at least I will get monitored every few months.
I was given Rituximab as my consultant said is best treatment for someone with Sjogrens Syndrome which I have probably for 10 years.
My question is this, has anyone else had this treatment and found that they know tend to get tiny skin sores, over their body, mainly on back and arms? I also had steroids given at same time as the Rituximab. I’ve also found that even though I’m active doing regular workouts, I’ve put on weight. A nurse on Macmillan said thst both these drugs can cause you to gain weight, I wonder if anyone else has had increase weight from it? Next time I see my consultant I will mention it anyway.
Any views would be appreciated. Btw, I was told it is treatable, but it won’t go away, so just hoping it doesn’t return too soon. Consultant said possibility it can return within 5 years.
The problem is that people have the exact same types of skin reactions not only with Rituximab but also with many of the other drugs used in the treatment of Lymphomas……do go see your GP or your Pharmacist as this is a good first step and let’s see if anyone else picks up on your post.
This group is slow at the moment so you may want to check out the Lymphoma Action. Lymphoma Action is the only UK Lymphoma Specific Charity who have lots of good reliable information, videos..... basically all things Lymphoma....... pre, during and post treatment….. (I also volunteer for LA)
They run regular Support Platforms both for patients..... I highly recommend these groups as there is nothing better than talking with other who have walked the journey.
They also have a great Lymphoma Action Buddy Service where people can be linked up with someone who has walked the same treatment journey.
They also have a Lymphoma helpline on 0808 808 5555 where you can talk with someone and get support - open every week day from 10 till 3.
Sorry to hear this 
Yes I did see your post to the nurse team….. I would hazard a guess that they will agree that there can be a skin reaction to Ritu but may well direct you to check with your clinical team
I am one of the Lymphoma Action FB group moderators so you will most likely bump into me….. 
Hi Fab123 good that you found the Lymphoma Action Online Support group helpful.
