The fear

So sorry! It is quite normal to experience a high level of anxiety before certain milestones along the path. If you have a particular world view, cultural or familial practice, psychology, religion or belief system, now is a very good time to dive into it. Inasmuch as all belief systems are human, all must deal with pain, suffering and illness. Thus, for internal spiritual support, I can advise delving into whatever restores peace to your spirit.

As to the PET, T-Cell Lymphomas are often diagnosed at stage III or IV. Yet, lymphoma remains treatable at all stages. I have been at stage IV twice and there has been no sign of either lymphoma for nearing eight years. So, chin up and focus on the love you have for your family and the love they have for you. Love is the most powerful force in the world and no price may be placed upon it.

This describes be also. I forget which sounds ridiculous and then I am floored again

Good morning Joolia the road ahead is going to be full of milestones (scans are just one of the many milestones) that will define the journey and as to how it will be navigated.

When I started out back in 1999 being told I had a rare T-Cell NHL I was 43, I worked a further 12 years in my demanding education post. Our two daughters completed their education, went into further education, graduated, are now both married and have 4 beautiful daughters…… and both run very successful business.

Yes over the years I had various treatment but I am also over 7 years out from my last treatment and loving life.

The road we all navigate on our journey has two directions to follow. There are two signs along this road one sign is pointing to Pessimism, a mindset that always sees the worst will happen, not appreciating that the many treatments available can do the job, where stress and worry controls every aspect of life and as a result the journey is made extremely hard and draining.

The other sign points to Optimism, a mindset that is full of hopefulness, determination, confidence about the future and appreciates that the treatments available can turn the Lymphoma tide….. even in the most challenging storms. It’s important to continually seek to choose the optimistic direction as this simple thing can define how you walk out cancer journey.

Well I couldn't have had a better PET scan results. It was clear! So were all reeling! I still have an appointment and I'm guessing they'll still start some kind of chemo, but already feeling so much more positive! 

Hi Joolia and this is good news. The journey is full of hurdles that have to be navigated, but the more hurdles we deal with the better our mind is at dealing with these challenges ((hugs))

Excellent. Better news could not have been expected. Fears allayed!

Hiya! That's great news! It was only a few weeks ago I was sitting waiting for my husband who was having a CT scan in Quimper hospital to see the extent (if any) of any spread of his Waldenströms Lymphoma. It felt like the longest 2 hours of my life and it wasn't even me having it. It's such good news when we get clear scan results, you  must be feeling a lot 'lighter'. That's one big hurdle down, and another step nearer the finish line. Sending you best wishes for your treatment.x

Andrea and Peter Wild from Brittany France.

Dottykc, honestly that's not the slightest bit ridiculous. One of the worst things about being I'll is The Fear of the unknown, and waiting for results. The internet is a supportive friend sometimes, and at others the scariest thing ever invented! Yes being as well informed as you can be is obviously good, but it's still a rollercoaster emotionally. It's possible to wake up feeling positive some days, but more likely you wake up in the same nightmare you went to bed with. It's easy for others to say stay positive, it's not easy, and I still believe it's only us survivors who can really truly know how it really feels. My husband's the one ill this time, but prognosis is good. And it's also important to remember quite a lot of what you will see on the internet relating to survival rates, treatment, etc, is probably out of date as amazing breakthroughs and new treatments and drugs are becoming available all the time. Lots of support on here, and I'm insomniac so usually always online for a chat. Have a peaceful day!x Andrea.

Brilliant news c

Thank you so much, Andrea. Op 04/04 and results 11/04. I still don't yet have my her2 result but 100% pos for est & progest. I hope all continues well with your husband and for being do informative and friendly xx