Hello all
i was diagnosed with NHL about 7 years ago and have been on watch and wait since. However i suffered from a blood vessel occlusion in my left eye recently (which has been satisfactorily resolved) and the doctor’s opinion is that it was a result of my lymphoma. I also suffer from peripheral neuropathy in the feet and ankles also due to my lymphoma so my doctor has recommended that I start taking the medication zanubrutinib. I’m due to start in a couple of weeks so wondered if anyone has experience taking this drug
Hi again Pappa and welcome across to this corner of the community.
I have not had Zanubrutinib as part of my many treatments over my 23 years but I just did a quick Community search and found a few mentions.
So put Zanubrutinib into the Search Tool 
near the top, select 'anywhere' and this will bring up all the older posts and as always you can hit reply to the posts and see if the member is still using the site.
What exact type of NHL do you have?
I did wonder if it was WM you had but did not want to make that jump.
There are a few folks in the group with WM so let’s look for them to pick up on your post and again you can do a search using WM or Waldenström's macroglobulinaemia 
