Hello,I'm a newbie although I have had Non Hodgkins lymphona for 14 years, I consider myself very lucky because of the excellent support I've had from my family and medical staff.

Hi Frigid Frog and a warm welcome to our corner of the Community although I am always sorry to see folks joining us.

I am Mike and I help out around our various Lymphoma groups. I was diagnosed way back in 1999 with a rare, incurable but treatable type of Low Grade NHL (CTCL Stage 4a) so although my Lymphoma ‘type’ may be different from yours I do appreciate the challenges of this journey oh so well.

Due to my many years of treatment, my other health conditions (See my story) and numerous drugs I am so aware of drug interaction...... I most likely am better informed than most of the nurses that I have dealt with over the years..... but every day is a school day in my book.

Good to hear that you are doing good and things are stable. I am just over 7 years out from my last Lymphoma treatment and doing great, turning 67 and living as good a life that any 67 year old can be living.

Always around to chat.

Hi Highlander, nice to hear about your positive attitude towards life, myself I'm definitely becoming more aware of the best medication to use, and most definitely not to use especially this year after having a heart attack and 5 stents put in. I certainly have the greatest respect for the medical team who looked after me especially because they informed me of everything they were doing and why.

I'm 70 myself and my only regret is my lack of physical strength because of my COPD I so miss doing a lot of everyday things. But still lucky compared to many others. Look after yourself. 

I had my heart attack back in April....... all down to the medications I had 7 years ago so had 2 stents put in. 

The Cardiac Surgeon asked if I wanted some medication to relax me....... "no way" I said and asked if the big screen could be moved slightly so I could watch the process lol.

Hi Highlander I just had the all clear Whoppe , yes I know it’s just back in the box but that’s fantastic we are lucky we live in a Country where treatment is good hope your doing well now highlander ,Had 6 Months Chemo & just had my CT & PET scan . All clear . Best wishes all love from Purrwoman 

Hi purrwoman, great to hear your news 

Now you need to move life on, sometimes this can gave challenges so you may find it helpful to make a cuppa and have a look at this great paper After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment milestones ((hugs))

Thank you so much I will I am already 80% disabled but you can never learn enough reading your comment since I was diagnosed nerly 4 years ago now was on Watch wait  then it  got to many lumps & problems , but thank you so much your a true inspiration , I was surprised I felt more exsausted after I finished chemo than during it I ended up with chemo fog, but getting better need laser surgery on 1 cataract & I will get a new electric wheelchair start living again in spring I know I will have to be carfull but strange nothing seems so stressful any more if I can do I will if not it can wait  the last 6 years been diffrent I left a 40 year marriage live alone in disabled bungalow but I hire help as when I need to do stuff & look after me if I get I’ll or unable to manage I am strange but happier than I can remember I found chemo shielding easier than having to have people in my home / family as I could still live a 24 hour clock & can do what I want be it day or night as energy suits me that I think has helped me so much , but Ty I will read as I find all information especially from others having had treatment is so important , best advice was keep moving as much as you can I think that was right we must go into NHL with 100% Belife in Survival . Strangest thing is feeling the cold I been over heating for years now I have to dress warm put heating on , typical but decided not to worry Happy Christmas x