Hi diagnosed with Diffuse Large B Cell lymphoma

Hi Joolz,  I'd forgetton about the chemical smell but it does wear off quickly doesn't it.  My alcoholic treat is a glass of baileys during my last week before my next round.  I don't really drink much normally but I do enjoy a glass of baileys it feels like a treat, just like your Prosecco I'll bet    I had my head shaved in a No2 before my first chemo.  My hair rapidly fell out from around day 17 or 18 after the first round. How long after your first round are you? I would also like to not have to shave other places on my body but so far all my other hair is still perfectly normal and hanging in there.  Have you got wigs/hats/scarves sorted or are you not bothering?  Its so true what ErictheViking said about being positive but still some anxiety, I don't think we can help being a bit anxious as we go through the chemo journey.  Also I think we can 'bear it' and 'beat it'.  I will keep in touch and if ever you just feel like a chat please do not hesitate to pop on here or message me on here xxx

Hi Eric, hope all went well today x

Hi Smoochie

I’m only on day 10 so maybe I’ll get to enjoy having some hair for another week - the hair was what upset me most when I was diagnosed but now I don’t care. I’ve an assortment of hats and scarves and went and got a wig before my chemo - it actually looks nice but I’ll probably stick with the scarves.

I am determined to stay positive- I do have bleak moms when I’m alone but am generally more upbeat about this than my friends are. 

I did join a FB group for DLBCL but they are mainly Americans and there is a lot of negativity on there and much praising the lord - nowt wrong with that but it’s not for me.

Now Baileys you are talking - that is usually my Christmas treat ……

Joolz x

Thanks smoothie for your detailed account your well ahead of us which gives some things to be aware of. They ended up doing just half my chemo today, the chop part and doing rituximab tomorrow. I felt fine all during but by night was aching like I had the flu. Apparently tomorrow is the worse day and will take 5 hours but I'll be on pain killers and drosey meds to help cope with it.

I've had bels palsy for 3 months which has caused me to lose my taste buds so I was hoping the chemo will bring them back hoping I don't get the metallic taste too. 

Hi Eric

I will be thinking of you today, I’ve only had one R-CHOP treatment which was given over 7 hours and honestly felt fine. You’ve got this xx

Hi Eric, hope all goes well today.  Sorry to hear about the aching.  Are you drinking lots of water?  They say it helps to flush the chemo through and out of your body.  Not sure if it would help x

All went well in the end felt bit sick not want to eat but feel OK now except the metallic taste I have. Cant believe how many more meds I'm now on. Hopfuly I get to go home today and have rest of my chemo as an out patient but there just waiting result of my lumbar puncture. Hopfully I won't get to many surprising after effects in next few days.

Has anyone been to join any groups I  there local area? I'm in Kent gonna find a support group if I can.

Hi Eric, glad it went reasonably well. Yes I was shocked with the amount of tablets - after first few days when steroids and strong sickness have finished it’s not too bad. I’ve got a pill organiser which helps. Don’t know of any support groups- I’m in Yorkshire- let us know what you find - there doesn’t seem to be that many of us with DLBCL x

Really glad that all went well Eric.  I didn't realise you were having the treatment as an inpatient.  I hope you get a good result from the lumbar puncture, please let us know.  Is there a Maggies Centre near to you as they have some good support groups.  I haven't joined any support groups except this one.  I did go to a 'Look good, feel better' make up and skincare session at my local Maggies Centre which is organised by Macmillan but don't think that wouldn't be of interest to you but maybe Joolz would be interested in that.  Have you got family and friends support Eric?

How are you doing Joolz?  I'm on my last day of steroids today so expecting to feel a little (if not a lot) wiped out tomorrow. xx

Hi Joolz, we were replying at the same time lol.  I have never had to take so many tablets in all my life!  l have a dog who isn't well and she has to take lots of tablets too.  I feel like I am constantly dishing out tablets to either myself or the dog lol.  Do you have to do the injections?  Have to admit I'm not overly keen on them, but its a case of just get on with it. xx