Hi, I'm new, hubby was diagnosed with NHL 5 years ago and after initial sessions of Ritixamub 'it' went quiet. Last year 'it' reared its ugly head again and last week he started chemo, sorry I can't remember the name of the drug. Today isn't a good day for him. I just wanted to reach out to find others who are perhaps in the same boat of feeling angry that the world is carrying on whilst I'm struggling with feeling so useless. Thanks for reading this.
Hi SeaTemp and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.
What exact type of NHL does he have?
I was diagnosed way back in 1999 with my rare, incurable type of NHL Stage 4a (CTCL) so although my Lymphoma ‘type’ my be different from your husbands I do understand the challenges of the journey well.
I relapsed ‘multiple’ times over my first 17 years requiring many levels of treatment (hit my community name Thehighlander to see my long story and you could let him see my story as it does highlight the extreme differences in the treatment journey)
But eventually in Sep 2016 I achieved my first remission that lasted more than 6-9 months and I am doing great…… my anger disappeared very early on in my journey as I realised quickly that I could not ‘live’ an angry life as ‘this’ is with me for life….. but I put that energy into getting through treatments and enjoying the treatment ‘down times’…… I did not let my lymphoma define me…… but I/we (my family and I) defined the way I/we would live along with my unwanted guest.
The Lymphoma journey can be rubbish and yes I can see why he can be angry, from my point of view the journey is what it is and thankfully there are lots of treatments available to get this back into a good position…… unlike many other cancer types where you may only get one chance.
I will always highlight the Lymphoma Action website. Lymphoma Action is a small but very active UK Lymphoma Specific Charity who have lots of good reliable information, videos, webinars….
They run regular Regional Lymphoma Online Support Groups for both patients and Carers and a great Lymphoma Action Buddy Service where people can be linked up with someone who has walked the same treatment journey.
Always around to chat at any time ((hugs))
Thank you 
your response has helped. I get a bit muddled so I may not have this correct but I think he has low grade follicular NHL. I think for now we shall take things an hour at a time not a day at a time. It's hard to explain how I'm feeling to friends and family who aren't directly involved so it helps to know there are others out there somewhere who understand. Thank you again.
Honestly, at times on our journey an hour at a time was all we could do.
We do have our dedicated Follicular lymphoma group as well.
Thank you
It helps to talk with others who understand this journey so yes it is nice to know you 
