New to the site! I am here because of my sister. She was diagnosed with Mediastinal B cell lymphoma in October 2021 and has recently finished her first chemo cycle last month. Oh what a roller coaster she has had thus far! She received the RCHOP drugs where she had to stay in the hospital for 5 days. Just before her last chemo medicine, her drip iv was not staying in her arm because she was swelling in her face and arms due to svoc (superior vena cava obstruction) so it was a delay on receiving the last drug. However, she was able to receive the last meds and just when she thought she had finish, she was tested positive for covid. She was isolated and that really made her depress. She also ran a high fever and caught some type of infection. To date, she is home now and is having problems eating. Her tummy hurts whenever she eats and she suffers from delirium (she talks non-sense alot). She is taking levofloxacin which might be the cause of delirium. Has anyone experienced eating issues and delirium?
Hi again Uniquejewel and well done navigating over to this corner of the community.
As I said in your other post I have a different type of NHL but there are many folks in the group who understand the B-Cell Lymphoma journey. R-CHOP is a very effective treatment, yes full on for some but doable with great results.
Talking non-sense can happen, this is often down to Chemo Brain, her body and her mind is being put through a lot due to the chemical reactions in her body so making allowances for this is important..... just keep an eye on her and if you feel something is just not right call it in to her team.
Not eating is also normal...... I often just lived on regular small cups of good liquidised home made soups...... stay away from food that needs to be chewed..... and no big plates of food.
The BOLD links above are taken from the Lymphoma Action website. Lymphoma Action is a small but very active UK Lymphoma Specific Charity who have lots of good reliable information, videos and run regular Regional Lymphoma Online Support Groups and a great Lymphoma Buddy Service where people can be linked up with someone who has walked the same treatment journey.
Always around to chat and help.
Good morning Uniquejewel, I see from the time you posted you were apache early.
A cancer journey in the family effects everyone in way or another. But I am leased that my simple reply help you understand your sisters journey better.
In the early days it’s like you have been set adrift in a boat with no way of navigating…. but the more you get to understand (often by just asking question to people who have the ‘T’ shirt the more you can navigate this better.
The group is always around to answer questions or just to chat.
