Chemo what to take with you

Hi LizS and warm welcome to this cornet of the Community although sorry that you had to find us and especially sorry to hear about your daughters Lymphoma diagnosis.

I am Mike Thehighlander and I help out around our Lymphoma groups. I was diagnosed back in 1999 with a rare, incurable but treatable Non Hodgkin’s Lymphoma so have been on this journey rather a long time.

This link Top Tips for the day of your Chemotherapy is taken from the Lymphoma Action website where they have collected peoples suggestions and tips on preparing for treatment, including what to get ready in advance to take with you on the day.

Lymphoma Action is a small but very active UK Lymphoma Specific Charity who have lots of good reliable information, videos and run regular Regional Online Lymphoma Online Support Groups and indeed a great Lymphoma Buddy Service where people can be linked up with someone who has walked the same treatment journey.

Do you know the exact type of NHL your daughter has..... as there are a good number.

Do you know the exact name of the treatment she is having?..... with this information we can help more.

Always around to help ((hugs))

Hi and welcome to the group, as Mike has said if you can let us know the type of lymphoma and the treatment regime we can offer better advice as some treatments take longer than others and some require stays in hospital. I did not take anything in for the first treatment as there is so much to take in and learn about what chemo day is like, my first treatment lasted 13 hours. So if you can let us know more we can share more.

John

Hi again Mags how are you?

I just checked and my initial reply was tagged to LizS and John piggybacked his reply on the end of my one.

Lets hope that Liz picks up the reply’s she has received and finds the information helpful.

Thanks for your responses. As I said to Mike, we are only three days into first diagnosis so it’s a bit of a waiting game at the moment to get a definitive diagnosis and treatment regime. It’s great to know this forum is here. I will signpost Kelly  here too but perhaps in a little while. She’s a bit overwhelmed at the moment understandably. 

Hi LizS so are you and Kelly (Mags?) related in some way?

As the community is anonymous we would not know this

No, sorry I dont  know Mags.  I’ll refrain from using names from now on. 

Hi LizS

Definitely a phone or tablet, and reading matter.  Not knitting, it is difficult with a cannula. One of my sessions lasts 7 hours and I would have gone insane without a book, I even wrote my Christmas cards there.  I’ve just done my 5 th cycle of chemo for nhl

Thanks Florence really helpful