3 R-CHOP done

Hi JustJemms and welcome to our little corner of the Community. Well done on getting this far and it’s sound like things have been going ok-ish and let’s look for your radiotherapy to finish this off.

I had 6 tattoos for 10 sessions of my 45 radiotherapy sessions and compared to all my other treatment radiotherapy was rather straightforward……. hit my community name to see my story.

Lets look for 2022 to bring a bright ray of hope for us all.

Always around to chat.

Hiya, I couldn't agree more re the standard of care I've received given the affect of Covid. I was diagnosed last month with non hodgkin lymphoma stage 4 and follicular tranformed stage 111b so feels like a double whammy!

Had my 2nd cycle of R-chop today and trying so hard to relax. I've all the means to but I'm in a strange place, I'm being strong and have a supportive family but I can't seem to concentrate on anything that's supposed to help me chill.... Music, TV, reading etc. I'm not in denial either, it's just the strangest thing ever. Cancer is so strange and we are all different, yet we all share that in common. Perhaps I'm over thinking. I suppose just typing this helps me explain something that I'm finding difficult to explain.

I always find the first week bad for been unable to 'switch off' or concentrate on things I consider really simple, even things I've previously enjoyed. 

I downloaded the calm app and listen to some of the stories. That way I can have the lights out, attempt to relax my aching body, and even though my brain won't shut up, it at least has some other sound that is there to focus a little.

I also watch children films like Disney or Pixar, ones I don't need to follow the story as it's already ingrained. Plus they're upbeat and positive which is needed! 

I've had really bad sickness over the first two cycles and an issue with my veins been irritated. So that's been an issue. I'm trying not to focus too much on the cancer, looking on the treatment as something necessary that each one is a step closer to making life better. 

I've been able to cope a bit better with my diagnosis because I have an aunt undergoing chemo for myeloma and another for breast cancer. I also cres for my grandma until she passed from Osophagael cancer. So I've approached this wanting to imitate their attitudes and be as postive as I can. Focusing on my blessings and accepting that I am going to have bad days, emotionally too, has helped. 

I'm so glad you have a loving and supportive family. I really hope that the R-CHOP kicks your cancer and that you start to feel more yourself, able to sleep and also enjoy the simple pleasures of reading and music again. You deserve it! 

This is a lovely thread to read, in spite of the cancer and its issues. It is really good to read about good care.

Since we are not allowed to bring anyone in for appointment, I always have my partner on the phone listening in and participating as needed, and on one occasion when this was not possible, I asked for and was given permission to record the appointment so he could hear it later.

Getting things sorted in your head is one of the big challenges. There is just a huge amount of noise to deal with at the start.

Great idea taking a phone to some of the meetings if you cant take anyone in with you.

Yeah. The other person sometimes remembers thing I forget in spite of always going in with a written list, and being able to them go over it again helps a lot to sort things out in my own mind.