Hello,
I was diagnosed with b-cell lymphoma, stage 4 exactly a year ago. I felt feverish and fatigued for 2 months before I decided to go to A&E, where my case was finally investigated thoroughly. I've been through 4 cycles of CODOX-M/IVAC and spent 11 weeks in a hospital bed in total, isolated from everyone but hospital staff and other patients on ward. The final PET scan has shown no signs of cancer in February this year.
I'd like to share my experience and give everyone hope and proof that lymphoma can be very treatable.
This month is particularly hard for me as it brings up a lot of memories. Although, it's been 6 months, it takes time for your mental health to heal after cancer treatment. The baggage of cancer experience can be heavy to lift.
I am happy to chat and answer any questions. I hope I can help at least one person to go through the same I've been though last year.
If you fight it, you're strong!
Hi and welcome to this corner of the Community although always sorry to see folks joining us. I am Mike Thehighlander and I help out around our Lymphoma groups.
I was diagnosed way back in 1999 with a rare incurable but treatable type of skin Non Hodgkin’s Lymphoma Stage 4a and although my blood cancer ‘type’ is different I have experienced most types of treatments used but not necessarily the exact same drug mix but do understand this journey rather well.
Good to hear you did ok with your treatments as CODOX-M/IVAC is full on.
You are indeed going to experience and have to deal with the post treatment steppingstones and with this in mind you may find it helpful to make a cuppa and have a look at this great paper After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment steppingstones.
Do consider putting some info in your profile (see the link at the very bottom of my post) as this is often helpful for the many folks that join the community but never post but can see some stories and obviously you can hit my name to see my War and Peace.
Always around to chat
