Different stages of the effects of RChop

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Hi everyone, I was diagnosed with Diffuse Large B-Cell Non Hogkins Lymphoma Stage 4 in January this year. That was a mouthful! Hushed  it came as a total shock, even though I had been unwell for a couple of months before and didn't know why. My bloods were low, was having night sweats, loss of appetite and losing my voice.  I am 68 and was fit for my age until then. I was admitted for treatment and chemo a few days after my diagnoses.  The first chemo session unfortunately messed up my kidneys and I was in ICU for 2 days having dialysis.  Got through that Slight smile and have had my 5th chemo.  Luckily I haven't been sick but I have suffered badly with swollen legs and feet and neuropathy in my hands and feet.  The swelling went down  after a couple of months.  What a job on trying to get shoes for my feet, so I could go out. Ended up with one size bigger pull on soft boots but did the job.  I also suffer with the cold.  Poor hubby!! Food all tastes the same but like others, I force it down to keep my weight up. I also drink 1-2 complan shakes to keep my weight up.  I try to keep as active as it will allow but after my 5th session am feeling more tired than usual. DOES THIS HAPPEN THE MORE CHEMO YOU HAVE?  On a good note though, I had a CT Scan and the Specialist said I had a 95% improvement, where she was expecting 40-50%.  That was a big surprise and relief.  Because my results were good, she removethe drug which was causing neuropathy and over a few days it is starting to improve.   I have my odd days when I can't do what I did the other day but then sometimes I overdo, as don't like sitting about. Must learn to behave!!  Smiling impObviously I won't know the true results until my Pep Scan in a couple of months but it goes to show that going through all the treatment, side effects, emotions etc that THERE CAN BE LIGHT AT THE END OF THE DARK TUNNEL  TRY TO KEEP POSITIVE AND FIGHT YOUR BEST FIGHT. HuggingKissing heart 

  • Hi and welcome to our little corner of the Community.

    Your journey although bumpy is not that unusual across many folks treatments.

    Fatigue does indeed build up over time so take each day as it comes, but at the same time keep some activity going as this does actually help overcome some of the fatigue..... but don’t overdo it has this tends to result in longer periods of recovery.

    I am assuming that you are having R-CHOP so good that they have dropped the drug that leads to PN...... my hands were the worst but we had to keep going as my treatment was being used as a steppingstone for going into Sten Cell Transplants (hit my name to see my story)

    My Respiratory consultant is convinced that a positive mindset adds a good 20% to how well we get through treatment and out the other side.

    Keep posting as it’s good to talk.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Thankyou for your feedback.  I am pleased to see you put up the good fight and are enjoying life.  Yes, I must learn to pace myself. Any tips on getting a decent sleep? Sleeping

  • Sleep can be a challenge and more so when having steroids. The brain tends to go into overdrive at silly o’clock so for years I have had a note book sitting next to my bed where I dump at the thoughts that buzz around my head especially during treatment - for me this did help.

    Back in 2013 one of the drugs I was on resulted in medically induced hearing loss with my Right Ear 85% loss with remaining 15% a muffled sound with continues pulsing 24/7 and Left Ear 50 – 60% loss + Tinnitus. So during the night there is no silence m, it’s life I have a steam train in the bedroom so my GP has given me a repeat prescription for ‘something’ that can help when I am not getting enough sleep.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Yes, I'm awake in the middle of the night with brain in overdrive. I have relaxation music I can play and failing that, a heavy mallet over the head. Got to keep a sense of humour.Laughing Thanks for chatting.