Hi I zm new here...My mum became ill at the beginning of December 2020 she thought it was shingles...however it did not get better and she had a scan.
We got the results of this 14th December they thought lymphoma and metastatis. She had a biospy which was delayed over the Chrustmas period. We knew that the mass had broken her verterbrae t11 which was giving her immense pain all the drs kept doing was giving her morphine and increasing the doses daily no one bothered to actually see her.
On the 9th of Jan she lost the ability to walk we had to call 999 and she was rushed to hospital who were rubbish and encouraged her to walk she fell and further hurt herself they did not inform us of this. Finally mum was transferred to a specialist hospital as it was feared she would be paralysed if not. We finally got the officially diagnosis high grade non hodgekins lymphoma grade 4. She has had radiotherapy and her first session of chemo.
I am trying to be brave but I can't cope. I am so anger that this has happened to my mum and how it has also impacted my poor dad. I am brave with them but I feel in shock. It is like everything is before the illness when everything was fine and after diagnosis when my World fell apart..how do I process and deal with this so frightened.
To further complicate I have just had appendix removed and a removal of an ovarian cyst which has been sent of for testing my parents don't know about the cyst but in my darker moments I worry in case this turns out to be a problem too.
This is too hard and I can't cope I am either angry crying or tired if alone if not the mask is on
He again and well done navigating across to our little corner.
As I said in your New to Community post your mum’s diagnosis journey is not that unusual as Lymphoma can be hard to pin down. High Grade NHL (Do you know the exact type?) can grow very quickly so the resulting treatment will have to be equally aggressive.
On the whole these treatments tend to be very effective and tend to work quickly but obviously your mum’s presentation area will bring other none NHL challenges.
These COVID times have made a challenging time even harder especially not having the freedom of movement and visits.
Your feelings are all part of the ‘getting to grips’ with this diagnosis and dealing with how this will all work out. But the more information you can get will help turn down the noise in your head. It is hard supporting family through the cancer journey as ALL the family are affected.
The anger you are experiencing at the moment needs to be channeled in to getting through this and out the other end.
What are the hospital saying?
What hospital is dealing with her?
Have they said the name of the chemo?
How old is your mum?
The added pressure of your health investigations is not helping so let see you get some good news soon.
It is an emotional time but its always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listing ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
We are here to help as best as we can ((hugs))
