Fatigue

The painting sounds good , we need something to take our minds off what we are going through.I know what you mean about fishing.I went snorkelling on hols and saw the serenity.However , I will only catch and release and probably wont catch much anyway .Its more about getting out there when it gets a bit warmer.I have a week now before my next app , glad for the break.

Hi, I did the Radar trial soon after my diagnosis in 2022, it put me straight in remission and Thank God I am still in remission. But I have anxiety when it comes close to my 3 month check up. When I was on the chemo I used to be so tired I could sleep all day and all night. I used to have it every Wednesday and only felt a bit better by the following Monday and then back to chemo on the Wednesday. I had ondansatron for the sickness. Now I have Zometa once a month. 

Fingers crossed for you that the remission keeps going, I've been so fortunate with my chemo so far that I haven't experienced many side effects other than the dreaded fatigue

Hi, I'm having SCT and the time scale is march for the harvesting of the cells with a transplant approx June.  I have just come through another round of fatigue, it's getting no better but fortunately I have a week free of chemo this week, I don't know what I would have done if I had chemo so soon. Anyway fatigue has gone and I'm alive again for a few days. Onwards and upwards. Don't let it grind you down. Live for the good days

Let's hope that's the only Demon we are fighting today 

Gosh I am jealous now. I went for my second week of a first round of chemo and was told today that I wont be having any breaks at all :(  12 weeks....They'll have to wheel me in like sleeping beauty before long!!!!!

Hi , Just go with it , I have just done 12 consecutive weeks and was proud of how i coped.Until now.I have no energy.You have to gauge it.If I was a car , my fuel is just above reserve light coming on . If I do much I am seeing the light come on.I am going to rest and see if I can get half full.I am sorry if I sound stupid.

Don't ever apologise, you don't sound stupid and its a good analogy. I know we are all different and our treatments affect us differently, but it is a good gauge when you get feedback from others. I hope you have managed to get the tank topped up :) 

The last two days I have started to feel a bit better.The gp has increased my pain killers and it seems to be helping.I actually managed to go out for a meal yesterday!I think the constant pain was sapping my energy.

That is really encouraging, I hope you keep going in a positive direction, just don't overdo it!! :)