Routine

Hi sweetie, I'm sorry you're finding things a bit tough. My partner has just finished his 16th week and is having a break before facing the next stage of his treatment.

My heart goes out to you, it really does. For me, Fridays (chemo day) always meant keeping a great distance for a good 36 hours, as he was also given his steroids at the same time, which made him VERY abrupt and short tempered.

I truly hope that you have family or someone close who can be there to support you.

I must say, though, that his treatment was nowhere near as drastic and life changing as I'd expected. 

Take care and spoil yourself when you can.

Thinking of you.

Christina x

Hello, saw your post and as I've been through 6 months of self administered chemotherapy,  I thought I would reply with my experiences. 

I am 72, reasonably fit and was diagnosed with Mgus, the smouldering Myeloma,  then mm all over a period of 6-7years, I was on velcade injections twice a week, these along with the blood thinning injections every day, Dextamethasone,  thalidomide. One minute exhausted,  next minute climbing the walls. It does get better as your body adjusts, but these are powerful drugs and they affect different people different ways. 

I lost my appetite, then it came back with a vengeance and I would eat almost anything.

The treatment will make you miserable a lot, when it happened to me, I thought of my family, looked in the mirror and say to myself " I am blessed" this helped me get past the bad times.

I lost weight,  my hair thinned and I felt tired a lot, BUT, I am 18 months out of chemotherapy and am " still in remission " I have put my weight back on, my hair is thicker than ever and I feel great.

Listen, it does get better, takes time, but it does.

We send you lots of love and our very best wishes and remember...A day without laughter is wasted.xxx

Hi mike

thanks for posting such a positive message!!! X

What a brilliant and positive post. thank you 

You are very welcome, onwards and upwards xxxxx

So glad you felt what I was trying to say, onwards and upwards xxxxx

Hi Mike

quick question did you suffer a lot with bone pain? I am and I’m hoping you’re going to tell me it gets better or someone else out there is!! X

1. Because of my age, I suffer from all sorts of pains, but thankfully haven’t noticed any ‘long bone ‘ pain that is associated with MM, saying that, I am taking codeine phosphate pain killers along with Gabapentin twice daily or more as required which are for my Peripheral neuropathy. These help or mask any other pains.
2. I also have a regular infusion of Zometa which helps with any bone pain .

it’s best that you talk to your doctor or specialist nurse, who can best guide you with any pain relief.

this maybe isn’t quite the answer you wanted, but it’s factual, so it won’t mislead you.

much love, remember to smile today x

Hi Mime

 thanks for responding   I take pregablin twice daily have pain patches and Oxycodone 4 x daily but these pains are getting me down, I suppose the fracture in my spine isn’t helping!! Anyhow I shall keep battling on xx 

Sorry  I couldn't help, but your user name says a lot for you,never give up, they are discovering new and better treatments all the time. 

Very best wishes.