Sleepless nights

Hi Paulo,

Are you taking dexamethasone by any chance? Those steroids significantly disrupted my sleeping pattern and I think that it quite normal. It is possible your body has got into a pattern and you may need to break that pattern. When is your SCT planned? In my experience, you are going to feel very tired during that process and it may be that your body corrects itself as you go through the treatment. There are lots of good sleep tools available on the internet if you think they would help but my guess is the dex has caused this and the longer you are off that treatment, the better your sleep should become.

Hope this helps and I am wishing you all the very best,

Greg

Hi Greg 

Thanks for your response.

I had been taking Dexamethasone up to my 4th cycle but that stopped as the SCT plan was next on the agenda. I've had my Stem Cells harvested now and the SCT should be end Sept beginning of Oct. 

I've tried this week to break this sleep pattern that I've found myself stuck in snd have had some success. 

My Consultant has told me to expect to sleep a lot post SCT so hopefully I'll slip back in to a normal sleep pattern.

Thanks again for your advice, its much appreciated.

Paulo 

Hi Paulo I am waiting on a SCT too. Since the start of my treatment my sleeping pattern has never been the same. It was very bad when I was taking Dexamethasone. But has not returned to anywhere near normal. I just try to take naps during the day if I can because a few hours a day can be exhausting. When I was an inpatient they gave me something to help me sleep. Maybe have a word with your GP if it gets very troublesome…. Even for a short period might help to get you into a better pattern. Wishing you the very best