Hello, (first post)
My dad was diagnosed with multiple myeloma 2 months ago and has been having chemo for the past few weeks, twice a week. He's 65 and a bit on the spectrum so not emotionally engaged with me or my mum, who is caring for him, this has strained the diagnosis so much for us all as communication isn't our best suit. I've encouraged him to go to counselling after he said the chemo was 'taking it's toll', I've expressed to him he can talk to me if he needs to talk to someone too. I guess I'm worried about his mental health a lot and knowing I am moving home to help my mum care for him is also scary as I will have to see him in a very bad way due to chemo.
He's lost interest in the world and I am not sure how to help or engage with him at times as it feel so surreal, like an advert for cancer research or something. Being an only child is really tough at the minute as well as it's coming up to Christmas, mum wants it to just be 'not sad' which feels so absurd to me. I sometimes feel that my parents are not emotionally in tune or good at expressing these things so it feels like an uphill battle with reality and I just want to be there for him and in this new reality.
I guess I wanted to get this all off my chest as a 24 year old, who is not living at home and working through the lock down, I've found the diagnosis in the context of Covid-19 very scary and I want to know if there is any support for families to emotionally engage with the diagnosis and a loved one having cancer in a safe supported environment, maybe also someone for him to talk to when he feels low?
Any support or similar stories I would be very grateful,
Kat
Hi Kat,
Welcome to the forum and I am really sorry to read about your Dad. I don’t have any experience about the spectrum but what I can say is that your experiences following a cancer diagnosis is sadly all too familiar. I have learned that no two people deal with things in the same way and there really is no right or wrong answer. I think just letting people know that you are there is the best thing you can do.
In terms of getting family support, have you tried things like Penny Brohn or Maggie’s? They have dedicated courses available for families to get together if that is what they are looking for. Counseling is also great, but I am not sure it is something you can suggest to people, it works best when people want that kind of support for themselves.
Using sites like this is also great. We have a friends and family section Family and friends - Discussion Forum
which you might want to take a look at? The members there might have some good ideas of how to help family members in this situation?
I hope this helps in some way and I wish you and your family all the very best. Please also feel free to stick around here, there is a lot of good experience about myeloma and hopefully you’ll find some people to connect with and who might be able to help as things go forward.
Greg
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