New diagnosis

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Hello everyone. I have a stage 3 malignant melanoma on a lymph gland in my pelvic area .I started immunotherapy two weeks ago, a double dose. I have another next week, then surgery scheduled for early January.

I have a fair understanding, but not many fellow sufferers to contact as I live in France and my French, whilst adequate, sometimes deserts me!. Good spirits so far, but some questions. For example, I have a sore spot inside my nose, should I mention this? 

  • Hi Thelma

    I am going through immunitherapy at the moment. I got a bit of a rash after the first double dose. During the second dose I got really bad pulsing pains in my back so they had to stop and restart it but then it was all fine. I have had loose bowels 3 days after the 2nd treatment. I get night sweats a lot. Previous to this I had 2 operations but unfortunately the cancer spreading from the lymphnoids into my tissue. I have my next double dose next Tuesday.

    Any issues I would definitely mention. I rang them when I got my rash and they brought me in to take photos of it and prescribed creams which help.

    All the best

  • Thanks for your information. It is so useful to hear from others going through it. Sorry to hear about the complications. Good luck