Good evening,
I do check on here most days but haven’t wrote anything on here because let’s just say from the 17/10/22 I have been on some rollercoaster 
.
Due to being rushed in with a serious wound infection I had an emergency CT scan and from this they found that the melanoma had spread to my pelvis and stomach. After a week of intensive IV I was released and my care was transferred to Clatterbridge. So not only was I still recovering from loosing my heel, groin dissection and knowing that the cancer had spread my head went west for a bit.
I began my immunotherapy journey in November. The plan was to give me 5 double treatments of Ipi/Nivo every three weeks. First round was great and I felt okay afterwards. The only side effect was a
ash on my chest. Then it was time for my second round and let’s just say my body said no! I had an allergic reaction and it began 2 minutes into it. I thought I was having a heart attack and so didy medical team but it was just an allergic reaction. They told me that I would have to take antihistamines before my next treatment. I was okay for about a week then I went downhill. I thought I had the flu, I lost a lot of weight, couldn’t eat, itchy all over and it turns out that I have Autoimmune hepatitis. Treatment has been put on hold and I have had to have intensive steroid treatment which has worked.
On the positive side I had my 3 month check up on Friday and my cancer nurses were crying as they could not believe how well I am and the fact that I’m walking with crutches - my heel has grown back itself, it doesn’t look great but I can deal with that. I’m a very positive person and I have a great supportive family and I’m ready to fight once again!
I do hope you are all doing ok and if not remember it’s ok to feel like that too x
