Having patience as a patient

FormerMember
FormerMember
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Hi I'm new to the group and new to Melanoma .I was diagnosed initially as stg 1 with a pigmented lesion on my right thigh. I'm 50 years old and like all things in life I deal with them pretty well. However at the diagnosis appointment I showed a new pigmented spot at my knee. The initial lesion had a WLE and the new spot was biopsied during this surgery . Shocked to find out it was a secondary from the primary lesion and there and then they performed another successful WLE .

So I'm now in a different ball game.

Diagnosed now with intransit melanoma .CT of the brain has come back clear and I'm' waiting for results of a body PET scan taken a week ago.

The waiting is so difficult  My emotions are uncontrollable. One day I'm lucid, reliable and in control .The next day I'm off the scale. During the day I can keep busy but my sleep patterns at night are when the anxiety is at its worst. Night sweats too are uncontrollable. I now dread to go to bed at night. 

It's strange/surreal writing it all down .

  • Hi , difficulty sleeping will have your emotions all over the place even without melanoma! Welcome to the community, I can relate to the anxiety being worse at night when you’ve run out of things to be busy with. Have you tried any mindfulness apps? My husband used one, he annoyingly falls asleep very quickly now leaving me awake, I would ask him which one it was but.... trying not to sound flippant, he’s asleep! 

    I know you said it seems strange / surreal writing it all down, but sometimes it can feel better getting things out of your head. When are your results due? 

    Take care KT