Possible subcutaneous recurrence?

Hi , I’m glad you’ve left a message for your nurse specialist,  and that you’ve had a chance to rant. 

Sorry Im just pausing to celebrate the Netball, England beating South Africa, whoop whoop

Now I’m in a positive mood and I’m thinking you’re on Pembrolizumab which systemically works everywhere when it works, so I’d still talk to your nurse but I’m think you might not need to do things again, I don’t know but I hope not and I can imagine they will be really good at monitoring things. I’m giving you a virtual hug to hopefully help the wobble I think you’ve got this and glad your flagging it up.

Thanks KT. I did think that about the Pembro actually, but I think it’s yet another possible increase in staging that is bothering me. Going from 1a (supposedly) to 4 in 8-months is scary! Good to be able to talk though to people who don’t assume I’m imagining it. X

Hi , It’s just a number, when I started Pembrolizumab and I had an all over body rash that delayed my next treatment my consultant said to concentrate on the fact that I felt well. It was good advice because when I was first diagnosed (straight to stage 4)  I felt really ill and so it was good to just take each day at a time and to remind myself that I felt ok.

Even if it’s nothing for you in the end, it’s natural to have a wobble, and sometimes that wobble just has to be acknowledged that it’s natural and frustrating, and typical of the uncertainty in this disease we have. I strongly feel that the coping with these wobbles will make us all stronger and we should pat ourselves on the back for coping through them. I hope you don’t feel that you’re over reacting or should be able to sail through without wobbling. It just is what it is and I’m looking forward to hearing you give yourself a pat on the back for coping.