Newly diagnosed melanoma

FormerMember
FormerMember
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Hello.  I am 45 with three children and got diagnosed with stage 1a melanoma last Wednesday.  I really don't know how I'm supposed to be feeling.  Inside I am shocked, upset and feel like I've had the stuffing knocked out of me but outside I'm trying to act like I'm fine and that its not too bad. My family are being supportive but also keep telling me that the cancer has already been cut out and that its all over so I'm saying I'm fine but I'm really not.  I don't think they understand that this news is massive to me and all I really want to do is burst in to tears - am I overreacting?  I'm waiting to hear when I will have the WLE and I'm sure once the results of this come back all ok I will be fine but it is still worrying me.  Did anyone else feel like this?  

  • Hi and a warm welcome to the online community

    I'm sorry to read that you've been diagnosed with melanoma. There is no right or wrong way to feel when you've just been given this news. I remember only too well how numb I felt when I was told I had melanoma coming up to 3 years ago now. 

    Of course it's massive news and it will take a while before it's not the first thing you think about when you wake up and the last thing you think about before you go to sleep. 

    I'm presuming that the friends and family who are telling you that "it's all over" have never had cancer otherwise they would understand that saying that sort of thing is not helpful. However, they are saying it because they don't know what to say and they don't understand the implications of the diagnosis. It might help if you point them to this page on things to avoid saying and they can then see what they should be doing instead to help you come to terms with your diagnosis.

    While it's true that the melanoma has been removed,and for most people that's all the treatment that they'll need, you'll have at least a year of 3 monthly check-ups and you must take care to protect yourself from the sun. Hopefully, you've already been given information about how to do this but, if not, let me know and I'll let you know what I was told.

    Now would be a good time to educate your friends and family about the implications of melanoma so that they understand why you might turn down a day at the beach or ask them to sit in the shade when you're out.

    Do come back and tell us how your WLE goes and if you want to ask anything just pop back on.

    Sending a supportive ((hug))

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    Thank you so much for your quick and kind reply.  It has helped me to understand that the feelings I've got at the moment are normal.  I have spoken to one of the specialist nurses who was also very kind and reassuring.  I'll definitely let you know how I get on with the WLE.  Thank you again.

  • FormerMember
    FormerMember

    Hello,

    I had exactly the same feelings 2 years ago when I was diagnosed with 1a. Just happened to look in on community, as I do when here’s nothing much going on, and saw your message. I just wanted to say that I don’t think people know what to say or how to act, joining this site will give you the support and getting messages from there who do know, exactly what it feels like is really reassuring.

    It takes time but if you are anything like me you will get back to normal life and not think about MM 24/7! That said I do still have the odd moment!

    Take care

  • FormerMember
    FormerMember

    Your family might mean well but what there saying is partial denial

    Yes, once you have your biopsy , etc... that helps but the melajoma is still there

    and you have to keep trying to prevent it from spreading.

    You can do this with vitamins and healthy food

    and my personal advice would be to avoid radiation from scans.

    Ask for mri's instead.

    These are just things I would do.

    But your family is right in a way that you may be well

    and enjoy that

    Let them believe your all better

    Because maybd you are

    Hope this helps

  • FormerMember
    FormerMember in reply to FormerMember

    Hello Sarah, Thank you so much for replying to my post. It really helps me reading messages from people who have experienced this.  I am having my WLE tomorrow morning.  I'm not sure whether I will receive the results before my follow up appointment on the 14th August but I will ask tomorrow as I don't think I can wait that long be it good or bad.  I'm feeling more positive now than I was.  It was just such a shock.  I'll keep in touch when I hear anything. Take care.

  • FormerMember
    FormerMember in reply to FormerMember

    Hello Courtnay,

    Thank you for taking the time to reply to my post and yes it really does help me.  I am having my WLE tomorrow morning so once the results come back I'm sure I will hopefully  feel a lot better.  It's just all been such a shock, I was so positive that it was all going to be fine as I didn't hear back about my results for five and a half weeks. I will take your advice about the vitamins and healthy food. Thank you so much. 

  • I just wanted to wish you all the best with your WLE tomorrow

    You should get your results within a few weeks but do check tomorrow as sometimes results can be delayed if the path labs are particularly busy.

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi

    I think that you're right that sometimes family and friends say things like "you'll be fine", etc because they've scared and don't want to think about the implications of a diagnosis. 

    How are you by the way? When you last contacted us you hadn't been diagnosed with melanoma but were worried that you might have it. Have you had a biopsy yet? 

    Talking of biopsies, you are right that a biopsy doesn't remove a melanoma but Lausop1234 has had an excision so her melanoma has been removed. The WLE is a 'belt and braces' approach to make sure no stray cells have been left behind.

    Neither CT or MRI scans are used in the UK for this stage of melanoma. Are they routinely used in Canada then?

    Do come back and tell us how you are. 

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    Thank you latchbrook.  Ill keep in touch with the results but hopefully it will be a case of moving on and going for the three monthly check ups.  All the best to you x