Hello, my husband has the Braff gene melanoma and has been on .Dafrenib and tremetanib
For about 10 months, . He suffered bad pain from arthralgia caused by the drugs
But apart from losing a lot of weight because of poor appetite tand fatigue they were the only side effects
Which was wonderful, . consultant has now given him a 2 week break from meds before putting him on 2 new drugs
Unfortunately he has started showing dementia type memory loss and it is worrying me because he was so active before these drugs
Is this normal with these drugs, .If so will it get worse on new drugs, .thank you for reading my waffle. P.A.C
Thank you so much Latchbrook, i am utterly devastated, .he was doing so well and the tumors were dimminshing,. This leptomeningeal
Is very rare apparently but I don't understand why they didn't find it ,. The ICU were amazing such loving and dedicaced care from them all, .a different story when they moved him to another ward because they needed the bed, .the palliative care nurse came to see me
And assured us he would be looked after and so would we, .we never saw them again !!! He went from loving calm professional care
And 24hrs later he died an awful death with us begging them to give him something, . I am devastated and very angry,.
Sorry my grief is overcoming my sanity
Hi
I can totally understand how devastated and angry you must be when you feel that you and your husband were let down by the care he received. Feeling angry is a totally normal part of the grieving process and I'm hoping that you have some close friends or relatives you can sit down with and talk it through with.
If you don't feel comfortable telling people close to you how you feel then please consider calling the Macmillan Support Line on 0808 808 0000. It's free to call and available every day between 8am and 8pm.
Thinking of you
x
Thank you so much dear Latchbrook, I will use that number , . I hope and pray that all goes well with you and everyone else
Who uses this forum, . You are very helpful and compassionate to all of us who need a little help and advice at a traumatic time
In our lives whilst dealing with your own personal struggles, may God Bless and keep you strong every day,
PAC xx
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