Hello,
Sorry if this doesn't make much sense.
After seeing my GP in Feb this year because of a sudden really bad cough, chest pain and breathlessness I was diagnosed with lung cancer in June. On 2nd July after a PET scan i was told it had spread to my bones and my brain. This was a total shock. I'm 72, but pretty fit, walk a lot, have never smoked. I started treatment in August - chemo & immunotherapy. After my first treatment i got an infection, then again after the second. Also after the second there was a problem with my kidneys so they paused the treatment for a few weeks. I had my third treatment last week and the side effects this time are much worse. I don't understand why as this time they have reduced the dose of the drugs so I expected it to feel better.
I've had 6 oncology clinic appointments now and seen 4 different doctors. I find it very hard talking to a different doctor nearly every time. One was particularly unsympathetic and when I asked for more anti sickness medication (because I didn't have any left) she just said 'You don't need them'.
I haven't been able to eat anything yesterday or today. I just feel exhausted and sick. I'm terrified of getting another infection. They said i had pneumonia. I don't know how long I've got to live and I feel terrified.
Hello there
I’m finding it hard to believe that your treatment has been so unfriendly. It’s such a difficult time when you find out you have cancer. The treatment can affect people in so many different ways. It must have been such a shock to find out the extent of your cancer.
Do you have designated cancer nurses at your cancer centre? If so, I’d contact them for some advice on your treatment sickness. If that’s not possible or emotionally difficult do you have access to a Maggies or MacMillan centre where you can find someone to help? You could also contact the specialist nurses on this site.
My thoughts are with you now and hope your treatment experience will improve. Hopefully others will be along here to offer you support.
My thoughts are with you. So much Iove to you, Daisy
Hello LondonLady,
I'm very sorry to hear of the problems you're having with treatments and inability to make any constructive progress resolving these.
Daisy is right, I think you need get some help to sort this out and contacting Macmillan would be a good place to start.
The Macmillan support line is a good place to start for specialist advice and you can also use the nurse specialist line for treatment questions.
I suggest you try giving them a call and attach a link to each below which will explain what they can do and how to make contact with them.
I do hope you can resolve your problems quickly.
Derek.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Hello again. thank you for your replies and apologies for not getting back sooner. I was feeling particularly low and panicky when I wrote. I'm feeling a bit better now.
Just to clarify, I now have anti sickness meds. When I was refused them it was after my second chemo round when they paused the next one and the doctor said I didn't need them because: "We give you those when you're having chemo, you're not having chemo at the moment so you don't need them". No matter that I was still feeling sick. Anyway, I've got them now, I'm feeling a bit better, eating a bit more.
I'm still feeling scared about what's happening to me - I suppose that's normal, but I'm doing okay at the moment. I'll probably be back with more questions soon.
Hello again,
I’m glad they’ve given you some anti-nausea medication. I had two rounds of chemo some time ago and I was given that along with other drugs after the chemo. I also received an emergency card just in case I needed to talk with someone urgently because of unusual side effects.
Yes, it can be very panicky at the beginning of this unwanted journey but as you say, it does settle somewhat.
Love Daisy
I'm pleased you're feeling a bit better now, any other questions just ask and we'll do our best to help.
Best wishes, Derek.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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