Hello, I’m new here.
I had a chest pain that went away and an annoying cough that didn’t, so on the basis of the cough I was given an x-ray on 29 April, and on the basis of that I was referred to hospital for a CT scan - the hospital where I had been having precautionary x-rays for eleven years after contracting bone cancer. The scan showed a soft tissue mass of 15cm in the left side of the lung, which they thought on balance was a recurrence of my bone cancer from 2014, and several small nodules (these might have been missed on my last annual chest x-ray of June 2024). Another possibility was a new primary bronchogenic carcinoma. That led to a referral with Medical Oncology on 15 May at what is now my local hospital with a request for them to discuss the imaging. A biopsy was needed to determine whether the mass was a recurrence of chondrosarcoma. I had the biopsy on 17 June, followed by cardiac ultrasound on the 22nd.
I’m due to have a kidney examination (GFR test) on 9 July, and a second appointment with Medical Oncology on 13 July, assuming the biopsy results are in. There might be the possibility of a stage 3 clinical trial in Manchester if the genetic markers from the biopsy are suitable. Other than that, the course of action looks like it might come down to palliative chemotherapy, or some other form of palliative care while living with the cancer, if it’s only growing slowly. It should all be clearer after the 13th. I don’t have any symptoms other than a little difficulty speaking now and again. The ‘cough’ that never really went away.
welcome to our little group, but I am sorry you have found yourself here. You are in the very stage of waiting for answers at the moment. It seems to drag on doesn’t it. I hope the trial will be possible, but I know how agonising a wait this will be for you.
My lung cancer is a secondary, mine is a sarcoma which was first diagnosed in 2009, and then in my lungs in 2014. I am stage 4, so incurable, but it is possible to live a long life on treatment.
Good luck for the 13th, please do let us know how you get on.
Can I just say; you are a trooper and an inspiration.
I am 36 years post-breast cancer and was called a "trooper" then. Now, I'm almost three years post-lung cancer, and I'm getting called a "trooper" again by friends and family.
Ann
That is fantastic Sanguinesse
36 years on from breast cancer is very inspirational. My family have the BRCA gene ( ironically I don’t) so I have been surrounded by people with breast cancer most of my life. I know how treatment has changed over the years, and how different the outcome could have been 36 years ago.
Keep telling your story, keep being an inspiration, keep being the trooper you are x
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