Squamous Cell Carcinoma

Hi Notsundancekid  Welcome to the group but I am so sorry to hear your news. I know how terrifying this is for you, and how agonising the wait is! Once you are able to start treatment, the panic will ease, especially when you get the first one out the way. It’s the fear of the unknown that scares us the most. 

The lung group is a great space to come, to share your experience and get advice from others. It is also a safe space to come to “off load”. Getting your thoughts down in words and pressing the send button does really help. You can also call the Macmillan support line who are available 7 days a week from 8am until 8pm on 0808 808 00 00.

My cancer is different to yours, but I am sure someone will be along soon to share their experience with you. 

Thank you for taking the time to respond. Best wishes for your journey.

• Hi my Dad was diagnosed with squarmous cell carcinoma stage 3c approximately 12months ago. He had a 10.2cm tumour in his left lung and lymph node involvement. He started treatment approx 3months after diagnosis and was given paclitaxel, carboplatin, and pembrolizumab. He had really good results and his tumour shrunk approx 80%. Unfortunately a few months ago treatment stopped working my dad was offered docetaxel which he refused. However he is still doing ok. Hope this helps 

Hello Notsunancekid

My husband was diagnosed a year and a half ago. 
They could not operate as the cancer was in the Lymph nodes. In our ignorance we really thought he only had months left. After Radiotherapy Chemotherapy and immunotherapy he is still very much here. The wait for the  first appointment is very frightening. 
Once we had seen the consultant we had a plan and left the hospital smiling and much more optimistic. His tumour did shrink and we are now waiting to see what the consultant has to say. 
I have read so many posts that give us hope treatments are so much better than they used to be. 
As advised by the others use your nurse for any questions or concerns you have. 
My husband is back on the golf course, all be it, slower than he used to play and he is doing a bit of gardening. 
We are going to Tuscany next week though insurance is costly it is worth it. 
I am sure you will be less worried once you have seen your consultant. I wish you all the best.  

Hi my mum has got the same cancer as yourself but unfortunately she also has cancer of the kidney which she needs a biopsy on to confirm the type of cancer it is. We’re now going into month 4 from when this all started and it’s very stressful. I just want her treatment to start and know exactly what we’re dealing with. Hope you get some answers soon x

Hi Ariel, Thank you for responding. I’m sorry to hear your mother’s news. I have my first meeting with oncology on Tuesday so I hope I’ll start treatment soon.

4 months and no treatment sounds a very long time. I hope you get some answers soon, but perhaps MacMillan can offer you some support on how to progress. Good luck.

Thank you and yes I agree it is going on far too long. I have spoken to her specialist nurse and she said that sometimes this can happen. I’m just trying to stay positive but I am very concerned with the amount of time it’s taking. Good luck for Tuesday x