hi partner was originally diagnosed with lung cancer large in his right liung and 2.2 cm in left lung had biopsys fluid removed and ct scans mri pet scan , yesterday he went for more water removed around his right lung 1.5lyrs and they said they think je has lymphoma now not primary lung cancer i spoke to hos cancer team this mornong and they said they meed to do 2 bigger biopsys to see if it is b cell lymphoma he has alarge mass in his right lung if it is bcell they will move him over to haematology team any one have any info on any of this or been through it at this stage he will need water removed from around right lung every few weeks till treatment starts any advice would be gratefully appreciated
Hi adonna28 I am Mike and I help out around our various Lymphoma groups and I just noticed your post.
Non Hodgkins Lymohoma (NHL) is a completely different breed of cancer compared to Lung Cancer so I would recommend that you talk with people who have walked the NHL path.
I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of T-Cell NHL eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ is different I do appreciate the challenges of this journey rather well.
Do look to join and post in our General Non Hodgkin's Lymphoma or our Diffuse Large B-Cell Lymphoma support groups.
There are actually 60 different types of Lymohoma and even then there are various different types of B-Cell NHL….. but it’s very important to understand that regardless of where Lymohoma presents (it can be in multiple places) it remains very treatable.
I will keep an eye open for you in the Lymohoma groups.
i have joined them 2 groups ty so much im sure i will get the hang of it, i will show what u replied ro my partner to leep his spirits up
Hi again.... yes you have joined the right rooms (groups) where you will get help from others like myself who have lived experience of Lymphoma.
As he has no clear diagnosis yet you may want to put up a post in the General Non Hodgkin's Lymphoma group first.
oh i thought that was the diagnosis ♀️im not very good at this am i , i will post their ty for guiding me and sorry for being a pain x
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