Lung cancer, metastasis to the head

Hello Trainspotter,

Just wanted to see how you are and of course, your Mum.

I hope that she started her treatment.. Fingers crossed

We have a scan and an MRI this week for the planning of the radiotherapy to treat the sites in the head.

We also have, at another hospital, an appointment to see an Oncologist and I am hoping that we will get the lung biopsy results then and can start the process for that treatment plan.

Take care

X

Hi Fran,

So far we have got a start on the secondary treatment for brain and it's going to be the SRT, probably 3 long sessions. 

Hopefully we will get some answers and start the ball rolling on the lung on Friday.

I hope your Hubby is doing ok.

I hope you are ok too.

I am managing better now that we have made a start. Have a lot to distract me with work and our house move. I think it is helpful ... although it is a mixed blessing in the middle of the night when I wake up and there's so much going on in my mind that I can't get back to sleep! 

Still early days yet but progress helps.

All the best to you both

x

Hi Mrsruby,

How are you?

I hope that you are getting some support and that things are starting to be arranged for your Mum.

I have found that I am managing a lot better now that we have got started with one of the treatment plans ( for SRT to the secondary sites in the head) even though it is scary.

Hopefully we will get more information about the lung biopsy results this week and can make progress there too.

The waiting is so, so hard....

Best wishes

x

Hi Pencil,

how are you coping?

thats good that you have some treatment plans in place and seeing the oncologist, least then u can ask Questions, and hopefully get some answers.

im So sorry your going through this, it is hard, but once a plan and dates are set up you kind of go with the flow,

my mum started her chemo and immunotherapy last Wednesday she was great for 3 days still Doing her shopping at the supermarket, cleaning her house,  And then Saturday I went there and she said she felt so Tierd that she could not describe, and since Saturday she has basically slept, I Went there yesterday before work, and she managed to stay up for a bit, but when I went think she slept the whole day, it’s horrible seeing my mum like this, but if the  treatment works and kills the cancer, like they said it won’t ever be cured but if it kills the cancer and keeps it at bay, then we have to go through this part of the journey, 

please let me know how you guys are,  and how the apts go,

thinking of you ,

xx

Hi Trainspotter, just read how your mum is getting on.. doing a lot of sleeping . I always like to think that sleep is a good thing. The body is healing itself and shows that the chemo is doing something !! It helps me to think of it that way. My mum has finished her radiotherapy 5 days ago snd she is sleeping much more now and dropping off asleep in her chair ( my mum is normally hyperactive !) the treatments must be doing something to their insides ! Take care xx

Hi fi21

hope your mum is coping well. 
I never thought of it like that,  my mums like yours hyperactive always doing cleaning, cooking shopping , garden ,  but since Saturday it’s like she gone into hybernating

as long as the treatment works she can sleep 24/7, 

Xx hope you are ok x 

lots of love to mum xxx 

Hi both, 

Just sitting in a waiting room and there's lots of Macmillan booklets, one is called  'Coping with Fatigue (Tiredness)'

Just thought I'd let you know, I am sure you can get it online, it says it's available in audio formats.

It says it has information for patients and carers.

Best wishes to you both and your Mums 

x

Hi Pencil, I find the Macmillan booklets extremely helpful. Here is the link to the coping with Fatigue that you have mentioned.

coping-with-fatigue-tiredness

Thank you for sharing the link.

This is for you  and you Train spotter

Best wishes