My husband is going out of his mind with worry. He hasnt even had the PET/CT at the Royal Marsden the on Fri 7th Feb, but had a call today to say they want to discuss the results on the 12th Feb at St Helier Lung Dept.
How can they know what to say if no PET scans been done yet?
For 2 weeks since that routine chest showed a lung lesion then straight after a CT Scan with contrast, then a lumg function test wasnt a good reading due to him panicking with the nose clip on. Take if off & he was breathing ok. No cough or chest pain.
Neither of us are eating or sleeping & I worry about as he had stroke 7 yrs ago, I worry about his blood pressure. Ee both look ill now & so tired as we arent sleeping.
As anyone been called in results even before the PET/CT scan been done? His head MRI been postponed as hes had cataract surgery about 3 wks ago & the next eye due in 3 wks.
Is all this normal procedure to be called in for resullts when scans still havent been done? As this happened to anyone else. My GP as prescribed me diazepam which is keepimg me calm, but I dont think that work on results. Both so tertified..
Sorry for rambling....
Thank you. My husband had bloods taken for ctdna something to do with a treatment plan.
I think it was the shock of spreading to brain & lower back that took us over the edge. U wudnt think there was anything wrong with him.
Travel is very important to us as well.
Thank you for this x
Well done you !amazing what positivity can do !
Hi Tillyboo, yes, my lesion was diagnosed before I had any PET scan. A PET scan is basically a CAT scan, with a different contrast media. In the case of a PET scan, a radioactive sugar... The difference is a PET scan shows how active the lesion is.
Excessive worry, not sleeping and not eating is the best way of letting the cancer win, please try and stop it... You are acting like there is no hope, yet as many on here are pointing out, there is hope. You husband needs to try and calm down for your sake, and you need to try for his sake. As said you need to be positive about the situation, that is the best way to get through it and win. I have my down moments, but always bounce back and try and be positive, so far since 2015 I have had Bladder cancer (bladder removed 2016), it spread to my kidney in 2020, so had my left kidney removed, then last year I was diagnosed with lung cancer. So January this year I had a great lump of lung removed... been a rough journey, but with the positive attitude, that I will win, I am still here, working, doing everything I used to do (not as fast, LOL). So stop the negativity and realise you can beat cancer.
Mark you are amazing such wonderful brave stories on here ! Everyone is telling Tillyboo the same thing from several weeks ago I just hope at some point she will start listening to all the advice that she is be in given as so many positive stories on here .sorry this is to Tillyboo as well as her husband is actually under one of the forefront hospitals of cancer treatment in the country I know as I am unde r them as well ,and if I just mention something happening medicine/ blood tests appointments are done almost immediately.Last week I had 3 blood tests in 5 days as they were concerned about my bloods dropping after chemo and radiation and I must say I feel so lucky to be with them .I m sure they will find a way to treat him but I do remember when I was having all my pre tests done one doctor said to me you are borderline for this op but we think your positivity will make the difference so we are recommending it.I m sure they have thought the same about you Mark Who wouldn’t t want to try and make you better when faced with such a brave person Sorry it’s Marc with a c
Jennifer
Thank, I don't know about brave, I have my wife, loads of kiddies (adults, sort of, reproducing adults!) and 18 grandkids to worry about and support by being an unregistered loan dept. So as the sort of head of the family they look on me o be strong, so I have to be... LOL... I also get back to work ASAP, after my recent VATS op, I was back at the desk after 4 weeks, being normal and trying to do what you have always done helps. Doing my head in because I feel week and tired after this op, but I'll get there, hoping to get back to the gym soon... And now I can pick up my bass guitar, back practicing for a concert later this year, for some cancer charity, the last one we did was for the lung foundation... So keeping busy, trying to be normal (lol, as normal as a 64 year old rocker can be), all helps, as so many other have said. I occasionally feel old, and that really bugs me, so I think positive and avoid the spiral of bad thoughts.
Thanks, that was young, I was 55 when I started down the cancer path, lol, and like you I have now clocked up two different sorts, hopefully no more...
Think you are being a bit hard on yourself —— oh dear it’s what everyone tells me !!! But that’s why we are still here . I like you have 8 beautiful grandchildren who make me smile but I am retired at 75 so I don t have your worries . It sounds like your guitar is good for you . I think we all have to find the outlet that keeps us sane . Gosh I have just finished chemo and 30 stints on radio and if you think how weak we are now I used to spend 5/6 hours in my garden but an hour sent me to bed yesterday but look keep going!!!! Brave man
Thanks for everyones replies. I think the problem, worry whatever you want to call it is, my husband had a stroke 7 yrs ago & to be told its gone into his brain as well as the lower back. The brains the thing thats scared us so much. Already told its inoperable as to far advanced. Even tho no symptoms. Its so hard trying to see a great prognosis, when the doctor he saw wasnt very optimistic.
I hope & pray something works. I wish you all well, so strong & positive all of you x
Doctors are often blunt, over a situation, in a way they have to be, they have to be practicable. The Macmillan nurses are the ones that provide support and encouragement. When the cancer spread to my kidney, the first I knew about it was when the consultant phoned me up (in the middle of a family barbecue) and said we need to remove you left kidney, can you come in for an operation is two weeks... As you can imagine I was in a bit of shock (well a lot)... You get use to their blunt, no holds attitude, it does not mean there is no hope, my best friend was given 12 months by his oncologist, he lasted 4years and he was in a bad way. Again he was positive to the end.
Doctors cannot give you false hope, they would end up being sued every other day, by some disgruntled patient or relative, who expect them to perform miracles... They have to be neutral, that does not mean you have to be pessimistic, there is always hope.
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