Osimertinib

I've been taking Osimertinib for two months now for Stage 4 EGFR positive cancer. I was really unwell before I started treatment but started to feel better in a few days and now am back to doing most of what I would normally do. Been fortunate not to have any significant side effects so far. Got everything crossed for my CT scan on Thursday. You might find the EGFR Facebook page a helpful place to get advice and support or they have a website with useful info too.

Thank you so much for your reply. Fingers crossed I take to it like you. I hope and pray that you continue to feel well and best of luck with your scan

I have  stage 4 NSCLC and taking Osiminitib for 16 months. Feel fine with hair thinning initially but no significant side effects.

My mum has been on Osimertinib for 4 and a half years. Only now talking about next treatment options which is possibly amavantinib alongside chemo or a clinical trial. 

She is otherwise fit and healthy. 

Stage 4 with EFGR mutation

Hi I was diagnosed18 months ago with Stage 4 nsclc. Osimertinib has been working so far and I have no side effects except thinning hair (I have a terrific wig the cost was met by NHS) Unfortunately at my last scan my cancer shows a "minute" increase and I've just had 5 days radiotherapy . I'm temporarily on dexamethasone to offset side effects. I've been advised osimertinib will continue. 

All good wishes to you