Lobectomy 4 months on

Just to add I had lymph nodes removed would that add to my breathlessness?

Hi nanny

no, it shouldn’t affect your breathing (that I’m aware of) think it may be routine to remove some lymph nodes to exclude cancer spread. 

Thanks Indian …. so no nearer an explanation

It sounds like you might benefit from a pulmonary rehabilitation programme, which helps you learn to breathe more effectively.  One of your specialists should be able to point you in the right direction.

• Hi folks, I'm new here but was really interested in this thread. I had a lobe ctomy 7 weeks ago. Initially all was ok other than drain ended up being in for 4 weeks. Suddenly in week 2 pain increased and I became breathless. Everyone assumed was to do with irritation from the drain. However 3 weeks after it's removal I'm still the same. Took me a bit of persuading Drs to take it seriously and they're now sending me for a CT. I'm just wondering if there's  been any improvement in your breathing?

Hi Mash well I’m nearly 6 months post lobectomy now and still get numbness around my right breast and axilla also still got fluid on my lung but not enough to drain…. Still short of breath on exertiion but it’s better than it was…I am on a waiting list for pulmonary rehab and Cognitive Behaviour Treatment as I do tend to get anxious about walking anywhere and worry about parking close to wherever am going.. I have managed to get a Blue Badge which does help…my last CT showed a lesion on my liver so more investigations Good Luck with your CT

Hi Nannyto6,  sorry to hear about the lesion on your liver all the very best with that. Sounds like I've got some way to go  like you I get concerned about walking anywhere.  I'm trying to do lots of exercise at home to get my lungs working more efficiently and like you feel there would be benefit from rehab. Thank you for the reply I feel happier knowing someone else experiencing something similar. Wishing you huge luck and best wishes and thank you again for your reply.

Nannyto6

had my lobectomy December 30th. Still get really breathless. Interestingly enough, I’ve been getting investigated for over a year with fatty liver, ? Pancreatitis ? Gallstones. I’ve had every scan going, keep changing the date for me to have ERCP as scans showing different things 

Hi Indian sorry to hear that… it seems never ending with CTs MRIs ultrasounds but I’m sure we’ll get there …good luck

Hi Mash good to hear you’re doing exercises… I.also have been doing  breathing and rehab exercises from YouTube… we will get there I’m sure