Hi.
I had a right upper lobe out in September. Theoretically cancer free now.
I have had no support or physio advice since leaving hospitals and have no idea if my pain levels are 'normal' or not, what I should be doing (currently walking up hills until I can't breathe :-) ) whether my lung function is what I could expect etc. I have tried various approaches to work, travel, exercise and ended up mostly trying them until I feel in pain or very ill then stop. Doesn't sound terribly sensible. Who can help?
Dave
Hi Chelle
Thank you so much for taking the time to respond I really appreciate it. I did think it might be a long shot with Dave’s post being so long ago but likewise I’ve been on the off time over the past year but not posted much.
I will see how things go on the new meds and maybe start another thread as you suggest.
Best wishes and hope you’re enjoying some sunshine today
Hi Tracey
Sorry to be so slow in replying and I hope that you have started your new thread and are getting bundles of helpful advice.
For me, I got no treatment or suggestions for treatment and the neuralgia took just over a year to clear. Not ideal at all, but I am cancer free today so I won't complain.
I will say that I still feel somewhat abandoned after the operation but I suspect that is partly because I didn't need chemo. And by the time I was really starting to be assertive over getting pain diagnosisi and physio support, Covid broke and they did genuinely have better things to do than help me.
But I did get a better response when I became forecful just before Covid - which I helpfully caught just before the first lockdown - so I recommend being clear and strong about what probelms you are having.
Dave
I had an open lobectomy last July and I am still getting pain where my drain was, I have since been prescribed stronger painkillers.
I have never been much of a keep fit fan, but since November I have been doing Tai Chi, which has been a great help as I also have COPD. At first I found it difficult to control my breathing but the more I did it the better it has become.
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