Hi all I have been on Pembrolizumab for 19 months and my stage 3 nsclc has remained stable which is great, I have had a few possible side effects but as this treatment is relatively new I don't know if there are commonly recognised side effects really. I have had problems with my neck for over a year and I usually manage with over the counter tablets and also have diazepam for when it gets too painful. I have had a few nights of being woken up by excruciating spasms in my neck, shoulder and shoulder blade which has eased with a heat pack and tablets to a niggly level which I cope with regularly. I did have a bone scan months ago and nothing major showed up just slight degeneration ( I'm 63 so not surprised at that). Wondering if anyone else has had anything similar on this drug.
Also the last three days I've had what I think is cystitis but it's not being helped by the powders you buy plus all the usual advice like drinking loads of water. I never suffer with water infections at all so wondering if this could be a kidney problem starting. Sorry for the long post I dont want to put everything down to the treatment but feeling a bit rough at the moment and probably a bit sorry for myself.
Thanks for listening
Vicky
