I have lung cancer and spinal metasis. They are both fairly small at the moment though and if it hasn’t already spread the outlook at this point looks ok!
Yes I read about where the cancer is. The test of the cells obtained via the biopsy will have identified which type of lung cancer you have. It is the type of lung cancer I was asking about; have they told you that yet?
Kegsy x
"If you are going through hell, keep going" ; Sir Winston Churchill
" Cancer may take my life; however it will not become my life" Kegsy August 2011
My only contribution is I believe this is a form of Non Small Cell Lung Cancer (NSCLC); not my sphere of experience. I am sure someone who has personal experience of this cancer will come along soon with more helpful info. The positive is it a relatively small tumour.
Keep us all posted when you get the treatment plan, as treatment such as chemo and radiotherapy can be quite generic across the cancers.
Kegsy x
"If you are going through hell, keep going" ; Sir Winston Churchill
" Cancer may take my life; however it will not become my life" Kegsy August 2011
I have a treatment plan now from the NHS and private.
I have lung cancer with only one isolated site in the back, so they planning to operate on both sites, then follow up with systemic.
strangely enough the private approach was vastly different.he wanted to go down the genetic mutation route first, then assess options, potentially starting with chemo.
i think surgery has a better chance of cure however if I am removing part of my lung, and taking 80-90% of the tumour from the spine.
nice to see you have got your plan. don't like idea of two different plans to choice from. the private approach will have the element of money in it, TC
Good you have a plan, I bet you are relieved to hear them and have them both to compare.
Just to say your biopsy is already tested for genetic markers (though there are many more that are not covered).
The standard ones are EGFR, ALK, ROS1, BRAF and PD1 Ligand. It would be worth asking if you tested positive for any of these. The are given as percentages and there can be a correlation between the higher the percentage to how well that I person responds to the immunotherapy that targets that genetic mutation (though not always - it's still quite new). If someone has a marker measuring at 50% or more they tend to put them on immunotherapy rather than chemotherapy.
I have also seen that whilst they say younger people are being diagnosed, that often haven't smoked sometimes have a positive for the ALK marker (I didn't). Just to explain a bit more.
