Lung metastasis to skull advice needed

Hello Deni123,

I'm very sorry to hear of the a lung metastasis to your skull. Having been a member of this forum for more than 12 years I cannot recall seeing a similar case before so can only conclude this is a rare occurrence. 

I do hope that a member here can respond with their personal experience. Whilst you are waiting it occurred to me that you might get responses from other forums such as Bone and Brain cancer and I've attached links to these below if you feel like posting on there.

You might also benefit from discussing with a Macmillan nurse who may be able to help you and I've also attached a link to this below.

I'm sorry I can't be of any practical help to you but do hope you can find out more through one of these routes.

My best wishes to you for successful treatment.

Hello Excavator and thanks so much for your helpful reply with links to forums that are good for me to get information. That’s so kind of you. 
my oncologist has said  it’s unusual for a lung cancer cell to spread to the skull (lucky me) lol but at least it’s being treated with a view to eradicating it. I just hope there’s no more rogue lung cancer cells waiting to spread their way anywhere else. I’m mainly worried about an affect on my memory but perhaps someone with experience of this may reply.

all the best to you. 
Denise 

Denil

I had stereotactic radio therapy  ( cyber knife ) last June 2025 at Royal Marsden . The procedure is at first a bit daunting but also fascinating ( maybe that’s just me !) . The teams are amazing . I have adenocarcinoma NSCL disease which spread to my brain in three spots in the cerebral area . I had no symptoms whatsoever . To date I am fine , the lesions are no longer visible on scans and I remain fully functioning . Good luck with your procedure , the success rate I was told is high , hoping you will be fine .rgds

paul 

Hi Paul and many thanks for your reassuring reply which is much appreciated. The side effect I’m most worried about is an effect on my memory. Did you notice any memory issues afterwards? I’m delighted to hear it worked so well for you and that scans show a good result. I’m feeling apprehensive so your reply helped. Also did you lose any hair or eyebrows? 
regards

Denise 

Hi Denise

in answer to your concerns , I had no issues whatsoever .

no hair loss , no memory loss. The consultant did warm me that I MAY lose some hair but it will grow back . 
I asked about success rate for my particular case and she stated a figure of 97% success.

In preparation for the procedure I went to Royal Marsden where they did an MRI and mapped out the areas of the lesions . They then take a mask mould and prepare a custom spooky mask that you is worn  over your face during the radio surgery . They also determine how many sessions of therapy needed . I was prescribed 5 sessions which I attended over a period of 1 week . The first session was 50 minutes. As I said previously , the first session is a bit creepy , they have your mask ready which is fitted over your face . You then lay on a bed in quite a large room equipped with speakers which they will play music that you select . At the back of the room is a large box mounted on a track on the ceiling , this is the robot cyber knife . The radiographers sit outside with a bunch of comter screens where they programme the robot . You lay back , listen to the music while this Robot TV like box moves around your head firing X-rays at the areas where the lesions are located . It’s totally painless and for me quite fascinating ( I’m an engineer and a bit Geeky )

During the week of the treatment they gave me some steroid pills which probably weren’t necessary but the plus side was I had a ton of energy for the week and enabled me to get a load work done let me know how it goes and feel free to ask more questions . You will be fine I’m sure  

Thanks again Paul. I enjoyed (probably not the right word)? reading about your experience. I wonder if I could listen to one of my Audible books although I like listening to music too. I’m having to travel to Oxford for treatment as the rt machine isn’t yet available in my home town. I’m also having 5 sessions. 
May you continue having clear scans and all the best, 

denise

Good luck

I guess you could take your own music ? Guess it depends on the media used. They just asked me what I want listen too and had it available I’m guessing through the internet . I went for a bit of claical which was quite relaxing , though I would normally listen to classic rock . Dire straits did come to mind at the time 

Forgot to ask Denise

what type of lung cancer do you have ?

Rgds