Stopped immunotherapy in August now colitis

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My hsband stopped immunotherapy in August as didnt work & started chemo just under 2 wks ago.

On Sunday out the blue started going to the toilet non stop runs & feeling sick.

Hes been in urgent care Marsden  day unit yesterday on IV fluids & IV steroids, back again today & tomorrow.

As anyone suffered this colitis due to immunotherapy ( even tho stopped months ago, apparently stays in system) if so how long does it take to settle? As he still feels ill & as had enough & as said he didnt realise how bad all this would be & doesnt want anymore treatment.

So I'd like to speak to someone whos had this same issue. I thought after being in urgent care all day yesterday he would feel a bit better, but doesnt. They're also testing for stool infection.

This as been nightmare as I'm not home & trying to deal with him/docs etc in another country, as I was on a short break, to rest & its been far from that.

  • Oh no   not the break you were expecting! Your poor husband is certainly going through it isn’t he. It sounds like the immunotherapy has attacked the healthy bowel tissue. This can happen unfortunately, and is usually treated with steroids to settle the inflammation. I expect they will keep hubby in on fluids until this settles. Hope you manage to enjoy some of your break x 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Hi. I've spoken to docs. Hes gone from IV steroids to oral. All CT scans show bowel healthy & just very unlucky he had this reaction to keytruda 2 mths after it stopped.

    Docs yesterday were pleased with bloods scans & he was eating & keeping the food in the bowel.

    His calcium level as dropped slightly, but due to bowel issue. So on stronger calcium meds.

    Given instructions re bland diet till all settled & will go to urgent care today & tomoz justvto monitor.

    I'm home tomoz, thank christ. Been very stressful