Hi All
It is now one year on since I was diagnosed with NSCLC and I a way I was quite lucky.
It might sound strange to say I was lucky but here is the deal. I was constantly contacted by the NHS Lung Foundation ( can’t recall the exact title ) so I decided to book a scan to basically stop being contacted all the time as in my mind I couldn’t possibly have lung cancer as I garden twice a week play golf 3 times a week and I was quite fit.
Roll on an about 3 weeks after my scan and a telephone call from the lung people confirmed they had found a mass on my right lung so I was soon sent for a biopsy and this confirmed NSCLC. Shocked and in disbelief I waited for the next appointment which was with a surgeon who advised that I was an ideal candidate to undergo surgery which I thought great that will get rid of the mass.
Next appointment was with my oncologist who first said you seem to have been getting mixed messages so I’m going to explain the position - first of all it surgery is off the table, stunned I waited for the next sentence which was the cancer is incurable but treatable and I was to have immunopherapy every 3 weeks and after 3 months if all goes well I would be given a double dose every 6 weeks and then see my oncologist every 3 month and that is the plan I am on now.
Other than tiredness for 2 days after treatment I have no other side effects and continue to do my garden and play golf 3 times a week.
The original plan was to have immunotherapy for 2 years but I am not sure what happens after that but I have confidence in my oncologist to formulation another plan.
This is my NSCLC story and as it is the 1st anniversary of my diagnosis I just wanted to tell you all.
Thanks for listening
Joroni xx
Thanks Excavator 
Hi Joroni thank you for sharing your story. I am glad to hear the immunotherapy is going well! I have seen many people in a similar situation to yourself over the years, and after the immunotherapy has stopped, they have just been monitored, some for several years before there has been any worry or sign of disease. And yes like you they are incurable but treatable. Immunotherapy isn’t possible for everyone, but for those that can have it, it is a miracle drug! So you will have lots and lots of cancerverseries to celebrate!
