My husband had his meeting with the Oncolgist this morning. The doctor explained the cancer can't be cured but he offered a course of Chemo incorporating Gemcitabine - Carboplatin.
My husband then went for an Xray of his abdomen to see if there was a blockage that might mean the cancer has spread to his brain. At this time, apparantly there is constipation blockage so hopefully Movicol will clear this and if not they'll scan to see if it has spread to his head.
Concerningly he was put under a lot of pressure from the Oncologist to take part in a clinical trial - incredibly the Dr said it would be one less patient to treat at the hospital! He then proceeded to call my husband after the appointment to push being part of the trial asking him to make a decision in an hour! I felt so distressed watching my husband just trying to cope with all the new information about his treatment let alone being put under pressure to make a decision in an hour without time to rest and consider all the options.
On top of this, my husband has bruising on the base of his spine, which the Urologist last Thursday explained he would need a CT scan for to make sure the cancer hadn't spread to his bones. Yet the letter from the Urologist has only just come through to the Oncologist and we forgot to mention the bruising this morning when we saw the Dr!
All this aside and given the cancer is aggressive, we're both puzzled as to why he now has a two week wait before starting the Chemo. I'm watching him deteriorate week on week and can only hope he'll be able to actually go through the chemo in 2 weeks time!
So sorry for my rant. This has been such a stressful day.
Have other people had any similar experiences? Would so appreciate any information that might help get things moving.
Thank you so much
What a heartbreaking situation for you guys but I can’t remember where I saw it but another person said her husband accepted a clinical trial and it was successful I will look tomorrow to see if I can find it for you. That’s how this site is top for information
also sorry to say some of the “clinical “ people forget about human feelings I can’t justify anyone putting a human being through that perhaps it should be suggested to be kinder.
you re going through terrible difficult time we all on here are verging from breakdown to positive thoughts to support our loved ones on here we stick together We r stronger for each other helps to share with all my love ️
️I’ll come back to you tomorrow xxx
