No treatment/the end?

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Hi all, my partner was diagnosed with lung cancer on June 30th. We weren't told directly but I saw in notes that it's stage 4. She was due to start immunotherapy imminently but yesterday they turned round and said she was now too ill to have it and has only "short weeks" left. Obviously we're both devastated but at the back of my mind I keep thinking can this be right when in some ways she doesn't seem that ill (yet). I guess I'm looking for reassurance that this seems plausible and that it's not just due to cost cutting or something! Should we try get a second opinion or go private or something? Or just try accept it? We knew it was terminal so had planned to be positive about the immuno and work towards some (modest) bucket list items, but it feels like even that has been taken away from us now. What does "short weeks" even mean? 1? 2? 3?? How will we know if people want to say goodbye?? This is all so sudden.

  • Hi   That is such devastating news for you and your partner. What had happened I wonder, in between them agreeing to immunotherapy and their recent prognosis. Did your partner have a scan in between? 

    Everyone is entitled to a 2nd opinion, you need to ask your partner’s oncologist about this. They will arrange for this to take place. This is a very common practice and something that your partner’s oncologist will be used to doing. 

    This has come as a very huge shock for you and your partner. If you need to speak to someone to help you through this difficult time please do call the Macmillan support line on 0808 808 00 00. 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Hi  Newbi newbi

    I am so sorry to hear your news. Chelle has given you some good advice. You need to speak to the consultant asking why there has been a change in the treatment plan, immunotherapy to nothing? If she has had a scan in between the changes, ask what the findings were. Yes, if not happy with what you’re told request a second opinion. Consultants don’t get annoyed when second opinions are requested. I believe they would do the same if the tables was reversed and it was their loved one in a similar situation. Use the telephone number provided by Chelle and speak to someone to help you through this hard time.

    My wishes and prayers are with you

    Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning(Albert Einstein)

    Marie1964
  • I read your post and I couldn’t not reply. I would push for some answers of why they have changed their minds. Lots of people have treatment at stage 4 - although this may only palliative treatment but at least this may give more time. Have they said that the treatment would make you partner even more ill than doing good? That’s the only reason I think they wouldn’t offer treatment if the negatives outweighs the positives? No harm in asking for a 2nd opinion. If it was me I wouldn’t just accept it I would make sure I am fully informed of what the diagnosis is and why they have decided no treatment - as least then you are know the facts and ultimately you can understand why they are suggesting this? Wishing you all the best.