Osertinib

Hello Barbarella ,

Welcome to the forum, I'm Eliza from the Online Community team. I hope you've been finding the Online Community helpful so far.

The Online Community team look after the platform. Hopefully other members will come along to share their experiences of being on Osimertinib soon, but I just wanted to offer you some support. 

I'm glad to hear you are recovering well, although we understand that it can be challenging to think about what happens next. 

Alongside talking to other members about their personal experiences, if you'd like to chat about what you're going through please remember you can contact our Support Line if you would like to. Our support team are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat. They are here to listen and help you find the right support. They’re here to chat, and they can also help with any questions you have. 

Our website information on lung cancer may also be helpful to look through to find out more about other treatments and possible next steps.

We'd also always recommend contacting your GP or medical team if you feel you need more information about your treatment plan.

If you have any questions or if there's anything further we can help with, please feel welcome to get in touch with us here in the Online Community team over email to community@macmillan.org.uk.

Best wishes,

Hello Barbarella

I don’t often use this site so have only just seen your post.  I’ve been on Osimertinib for 21 months.  My tumour is inoperable but has shrunk by more than half, and the metastatic sites where the cancer had spread have improved too.  Most of the time I feel well and my energy has gradually improved;  I’m back to doing most of the things I did pre-diagnosis.  I’m assuming that you are EGFR positive if you are on Osimertinib? There is a very helpful Facebook page, EGFR Positive UK, which I’ve found very useful.  Hope this helps.