Small cell lung cancer with brain mets

Hi, we have also just found out my 80 year old grandma has sclc but they can’t treat her as she is too weak. We know it has spread to the second lung but not sure if it has spread anywhere else as they have not checked. We have been told it is very aggressive and she is on palliative care for pain relief. Like your mum she also seems quite well, she’s extremely breathless but nothing else. 

This has all happened in a month, for the first two days I just cried all day it was such a shock, most days I still have a little cry but I am just spending as much time with her as I can. I have a nephew who is close to her who is a similar age to your children and we have decided not to tell him until we really need too so he can just enjoy the time he spends with her. He knows she is poorly but he doesn’t know how poorly and we are just preparing him for it when he asks if she’ll be ok by just explaining she is starting to get old. I know your mum is a few years younger then my grandma tho. 

there are some posts on here from people who have experiences with sclc and chemo, the chemo does make people poorly but it can also give them quite a lot longer then they would get if they weren’t treated. You can search for specific topics using the search bar at the top and it brings up all the posts relating to it. 

Everyone deals with things differently, it’s okay to cry and be sad I feel like I am already grieving even though she is still here. When I am with my grandma I just try to be positive around her we don’t give her any false hope as we all know the outcome but we can still be positive around them. As my gran is on palliative care we are speaking quite openly about her funeral and what she would like (she initiated these chats) It’s very strange to be sat with a person who is told they are dying and there is nothing they can do but it also means we can have conversations we wouldn’t have had and really cherish every moment we spend with each other. 

I hope your mum gets some treatment and it is effective and gives her a good quality of life and plenty of more time x

Thank you so much and so sorry to hear you’re going through similar. This disease is so cruel. It has no enemies. My mum is the kindest most selfless person I know and it’s just devastating. Wishing you all the best getting through this with your Grandma xxx