Hi all T4 with secondaries.
After horrible weeks of miss diagnoses, told 3 weeks ago by my Professor Oncologist.
50% chance of treatment (chemo) working to hold.
50% chance of making cancer worse.
It would be weeks after Chemo before outcome was known.
100 % Chemo would make me very ill.
I chose no treatment.
prescribed low dose Morphine to relax breathing stop my shallow breathing, this is working well.
Only symptom horrible cough when waking up and at times of big effort, to clear gallon’s of mucus.
Then sent home, no indication of what progression would be like, I asked told everyone different.
I could ring if needed and there would be bed for me once the end was near.
Just in limbo and ground hog days.
Seen community nurse who was out her depth and contracted in support.
Visit from MacMillian physio cancelled by them.
It is ground hog day again, is this ‘normal’ should I be getting more help?
Paul
